MS event

Hi. I have posted here a couple times, but I wanted to see if anyone has experienced something similar. I have had double vision for almost 1 year now. After going to countless doctors, one neuro opthamologist repeated the brain mri and I do have one leision on the brainstem which is causing all of this. Even with the other symptoms,(left side weakeness, some tremor) she said that I can not be diagnosed with MS until I have another "MS event" which will effect another part of the nervous system. The double vision will never change, but I have prisms in glasses that are helping some.
Have any of you had a clinically isolated event or been diagnosed with clinical isolated syndrome? I understand that sometimes you will go on to be diagnosed with MS and there are other cases where that is the only event that happens.
I would be really interested in talking with someone who may be going through this same thing. I am not on any medication yet. I will see her again in Dec.
Thanks and hope to hear from someone soon :)
Katri