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Multiple Sclerosis Message Board


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Over the last 4+ yrs, I started having odd symptoms which for a LONG time I was told was in my head (but i had no insurance THEN and got the boot every time). I was dx's with panic and anxiety disorder... Given zoloft, Panic attacks went away after a few months, anxiety stayed and now comes and goes. Zoloft after a yr turned me into a zombie -i felt no emotion, good or bad so, I got off it.

My memory has been getting worse over this time, I'm early 30's now, I would get weird hot sensations on skin on my arms and chest as if a bad sunburn, tingling in foot & fingers, some times face. Have become phobic of going out alone due to my pain and symptoms that hit random, i'm sensitive to light and sound.

I often have to let the person riding with me, take over and drive.... It's like my arms go dead or my legs, or my tongue even..... I never know what it will be... I used to obsess about these things for the first 2 yrs or so but got sorta used to it now and don't sit round thinking about it...... It just comes out of no where....

the other day my whole right side went dead. 1st i felt soooooooooooooooooooooooooooooo tired as if i had to sleep RIGHT THEN & THERE, just a huge urgency to sleep, had pricking feelings in forearm and fingers, then pain behind my leg, then couldn't speak right and got head ache, been getting weird pains and head aches (head aches have started over last 6 months). I might go 2 or 3 months and feel fine as if nothing is wrong with me, then -wham!!! who knows what it will be each time...

I woke up one day having trouble breathing and tightness in chest and throat so went to ER and was Dx'd w/ asthma and put on inhaled steroids (qvar) and xoponex rescue inhaler. The qvar gave me oral yeast infection right away and had to go back to doc to get pills for it. The yeast came almost every week! and had to keep getting treated for it. I was rinsing mouth like crazy and doing the swish and swallow anti-yeast rinse so, later switched steroids).

Then saw a pulmonologist and was dx'd with gerd and, asthma test was inconclusive due to the girl litterally sucking all the air out of my lungs (she pushed wrong button then said, sorry... sheesh! it sucked so much air out, my jaws were sucked together like a fish and made a pop sound when i pulled myself off the machine). My numbers were low the first round w/o xoponex (which is same as albuterol but with out the jittery feeling). The 2nd time with the inhaler was when she messed up and it sucked the life outta me so we had to try another day.

I started nexium 20mg 1xdaily. My food would stay down much better and didn't have burning in chest but after a few weeks on it, my anxiety hit the roof and heart was pounding. I figured it was just my issues trying to come back but looked into side effects of nexium and that was one of them so I stopped taking it and all the anxiety went away.

I saw a gastro doc, he did endoscopy and found nothing but did stretch my throat which helped me to swallow a lot for a month or so but slowly it has come back (i know someone who had to get theirs stretched 3 times before it has stayed fixed, for her now, it's been 2 yrs so far & she can eat anything), I'm having a LOT of trouble even swallowing saliva at times and eating food... is just like shooting the very back of your tongue/throat with novacaine and then trying to swallow -just not happening. I have almost got food into airways many times now and I am starving as we speak but can't get it past my throat.

After the gastro doc, I saw allergy doctor for my breathing issues and did allergy tests. Turns out i am allergic to a lot of stuff including my sweet little doggie which is staying -too bad allergies! Lucky for me, it's only one of my mild allergies or else he would have to go. I was put on claritin-D, singulair, advair discus (i never took this one, salmeteral which is in it, has caused a lot of asthma deaths -no thanks!), nasonex nasal steroid, azmacort steroid inhaler (no more yeast infections -yippy!!). I was also dx'd with allergic rinitis this time. The nasonex (and all others i have tried for nose) have closed me up like i did not have nostrils so i stopped and could breathe through nose most days. Decided to stop taking claritin-D cause my heart was beating weird and I got a horrid kiddney infection shortly after taking it.

Had to go to ER with kiddney infection and get it treated with antibiotics and some other stuff.

I'm a mess..... but not every second of the day (just very often) and it's bad and random enough to where I can't do much such as work regularly. If I could take off the days I fall in the floor or my side goes numb and can't pick things up, or my lungs decide to squeeze up and not let me breathe well then that would be great.

When these things happen it's like it takes me a few days to get better from it enough to function well. I refuse to drive alone because my arm & leg went semi-dead while driving and I had to stop the car and let my sister drive. If I didn't have someone to either drive me or a person who can drive, ride with me, then I'd get no where, including doctors. The small town i live in has next to zero public transportation and even if they did, on the days I have these spells/attacks/what ever you wanna call them, I often can't speak well, can't say what I am trying to say, confused, and can't think or focus.

NOW, I had testing for B12 and some others done will know what's up with that tomorrow. I have a brain MRI in a week and also, have to wear a holter monitor the day before the MRI to see what's up with my heart.

GOD I PRAYYYY IT's ONLY LOW B12! BUT he said it very well could be MS. Thing is, I have been pushed away and not taken seriously by some doc's before but back then I had no insurance and could not get proper testing done. I read about one person on here who HAD MS but was told for a long time they did not cause brain MRI did not show lesions... Later they did some spine scan or something and found lesions there, I think... So, why not just do MRI for brain and spine at once? I'm worried the brain thing will be clear, then that leaves me not knowing about the spine -joy.:confused:

This is my PCP running these scans and he might send me to a neurologist after we see what my tests say. I think I should see an ENT and a Neuro doc since my main probs are swallowing and weird nerve sensations (pricking, burning, tingling, etc)..

and heck, I might even need a good shrink after this is all over..... I'm so tired... Tired of searching, tired of trying to get people to believe me since my symptoms are random a few people think it's in my head. The anxiety might very well be since it seems to be secondary to my pain or asthma -I'm not superman though, anyone with sudden horrible pains or no air is going to feel some anxiety.

Sorry for the long post but there has just been so many doctors, symptoms, problems adding up, nothing helping, no one can pin point my test results, everything good is short lived, I'm getting a little depressed with all of this I think.........
I don't want to be Dx'd with anything un-fixable, but no one does..... At the same time, I just want to be Dx'd and get it over with.... The searching on top of suffering is more than I can handle. It's been yearrrrrs now.

Pray for me, please, that one of these tests hold the answer.......

In the mean time, anyone have any good ideas for making money from home/home based business? I want to work really bad, but my body is just too unstable to work for someone out of my home.... At least here, I can crash for an hour or 2 to get myself back together in the midst of working.

ahhhhhhhh........ if i could just go back in time when i was not ill......:rolleyes:
Does all of this sound like MS to you or should I just give it up and succumb to it all being in my head? My new pcp thinks it's "somthing", just not sure what yet..... I'm affraid if my tests don't show something soon that even he will stop believing me...... Thanks for reading my post.





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