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Multiple Sclerosis Message Board


Multiple Sclerosis Board Index


I hope this is not to long. About 4 years ago my life was great. I was a truck driver seeing the world. I decided to drive local to be close to home for the kids. B4 I went local by a couple of months I got broncitis. I seemed to have it forever. It just wouldnt seem to go away. Well I thought i was better and came in local. All of a sudden when I thought I was better I got what I thought was lyariongitis (?) I totally lost my voice, and there was something in my throat that made it hard to breathe. It was like glue and it just wouldnt come up, and when it did it was so thick i never seen anything like it b4. I began to ache and burn all over, and became so week some days I couldnt even climb in my truck. I finally went to a doctor and saw an lpn who ran test and said I had Emphasimia. I began to cry and told her that I hurt all the time and I was so tierd. She brushed it off like I had the flu. So I tryed to tough it out, tryed to keep working and things just seemed to get worse. I finally broke down to my boss and told him I needed so time off that I just couldnt do this anymore. He gave me a week off and then he fired me. By the way I lost my voice for almost 8 months and had to teach myself how to talk all over again because I had no voice, and the glue in my throat stayed with it. I went to another Doctor whom I broke down in front of because I just felt Broken up all over with aching fire that made me so weak. My husband mentioned fybromyalgia,cause believe me we talked to who ever would listen, we wanted information on it and the doctor said "well thats what she has", like he just pulled it out of the air. I went through a stress test on my heart, had all the blood work you could imagine and everything was always normal. Got another doctor who thought I was crazy because I was so depressed from being in pain all the time. He never did anything but pass out all kinds of anti-inflamitorys which did nothing, and anti-depressants. In the mean time my back began to burn so intesnsely anytime I stood or walked in the lower middle part of my back, it would get locked up and I could barley get to a chair. If I sat It would relieve some of the burning and pain but it would ache. I have to walk around with a shopping cart because my legs get so weak and my back hurts so bad I need something to lean on. I can not get up with out help or funiture ( I Am telling you where I am now as far as my condition ) Once I get to my feet and get a good motion going I can walk pretty good but then my back begins to burn, and my legs get weak and burn like fire. When I try and brush my hair my arms burn and ache bad and get very weak, It aches at my joints and burns everywhere in between when I use them. In the center of my chest under my breast at the top of my ribs it feels like someone is grabing and twisting my muscles, and its almost paralizing. It shoots nasty pain up the sides of my neck into my temples, and my throat begins to burn like fire. Not like heartburn. If it gets to intense i sweat profusley from my face. I was told this was acid reflux but it never seems to happen after i eat anything. Sometimes I find it hard to swallow food or liquid. Now, and this is a new recent thing, I keep seeing these zipper like floaters in my perephrial vision area and sometimes in front of what I am looking at. It makes it hard to see the things I am trying to look at. It usually only happens in my left eye but I have experienced it in my right eye as well. Usually only one eye at a time, but have experience it in both eyes same time a couple of times. This has been going on for about 2 or 3 months now and at first thought nothing of it just thought it was wierd. It doesnt happen every day, just once in awhile. My whole body aches and burns all the time. Some days are good, some days are fair, but some days are unbearable. Sometimes I feel good for short periods of time, then it comes back with avengence, for weeks, sometimes months. When I wake up in the morning what ever side I am sleeping on as far as my torso sides is numb to the touch. I wake up in the middle of the night with numb hands that wake me up cause they feel like ice when this happens, it aches up into my arms. My shoulder joints ache and that wakes me up. sometimes if I lay the wrong way my legs go paralyzed and the lower part of my back feels wierd. My hands feel cold most of the time, even when I am awake. Sometimes if I try to reach out to an object its like my arms will not lift up where I want them to go- like theres something fighting them. When I wake up in the morning the small of my back hurts so bad I can not move. It takes alittle bit to get up. Everything just hurts. Ok currently whats going on with the doctors is this... I begged my doctor to see an ortho specailist cause I thought it was something in my back, and instead he sent me to a rhumetiod specialist. Rhumetiod specialist confirmed fybro, and did MRI. to rule out Arnold Chara (?) disease. When I called for the test results, I was told by the nurse that the doctor doesnt treat patients who have MS and I needed to see a neuro specialist. Rhum doc found 3 white lesions on my brain. Went to neuro spec. and he said he didnt think I had Ms but rather perephrial neuropathy, and thought I was Diabetic. Up to that point I was not diabetic, but did blood test for it and all of a sudden I was diabetic. So I was suck with the diagnosis of fybro, and diabetic neuropathy. I moved and had to change Doctors again and when I got my new Doctor He was very rude and proceeded to tell me he did not think I had fybro, or Neuropathy, so proceeded to send me to his own rhumetoid spec. and neuro spec. Went to neuro spec. and he asked me a series of questions which I answered honestly, and sat me on the table and cracked me in the knee caps. I brought films in from my MRI, and he never even pulled them out of the folder. He looked at the doctors reports and said "I think what the other neurologist thinks, you have neuropathy". I then proceeded to ask him what the lesions on my brain were, and he said " Well I dont know, have you ever had migraines?", and I said well yeah I have had a few im my life (who hasn't?)and as I barely finished my sentence, he says " well thats it then- thats where there (the lesions) from", Again reminding you he never even pulled the films out of the folder one time, and sent me out the door with an increase dosage of gabapentin 600 mg [email protected] a x 3x a day. I Then went to the Rhumetiod specialist who confirmed fybro. He also sent me to a doctor for nerve conduction test on my legs (only) which then confirmed perephrial neuropathy. However.... What if I am still being mis-diagnoised? I have been researching neuropathy, and Multiple sclerosis and I feel my symptoms are more closely related to MS not neuropathy. Ok so I have neuropathy, but isnt it possible I could have both and the MS is being over looked? I am due for another MRI (was told to have another one in a year). Have a doctor appt. coming up with rhumetoid spec. next week and I am not sure how to deal with this. Should I request my MRI? Should I tell him of my feelings? I am to a point where I am afraid to stand up for myself, cause I think all these Doctors think Im crazy. I am really not crazy but all these problems are enough to make a person crazy. Not sure what to think anymore. Should I request a spinal tap? Do I have Ms, Neuropathy or both? Sorry its so long think I just need to get it all out. Any help or advice would be so great. Again sorry so long.





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