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Multiple Sclerosis Message Board


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Re: Hi! New Here
Jun 27, 2007
Hi Candi - I am by no means an expert but here is how I understand it (anyone else feel free to jump in with more info). The white matter in your brain is not where the processing takes place(that is the grey matter), but where the nerve fibers are that are responsible for communicating from your grey matter to your body. Lesions show up in the white matter. From what I understand, a doctor determines lesions are due to MS depending on where they are and the shape of the lesion. In my case, they were looking for MS based on my symptoms and while they found changes in the white matter, I do not have lesions in the brain. Lesions can also show on an MRI of the spine, which I have not done yet. I hope this helps. If you are looking for more, any MS or medical website can provide better explanations. Good luck with your upcoming testing!

Jill
Re: Hi! New Here
Jul 1, 2007
[CENTER][I]The white matter in your brain is not where the processing takes place(that is the grey matter), but where the nerve fibers are that are responsible for communicating from your grey matter to your body. Lesions show up in the white matter. From what I understand, a doctor determines lesions are due to MS depending on where they are and the shape of the lesion.[/I][/CENTER]

Forgive me for jumping in, but to clarify, legions are Scar Tissue. Scar tissue forms when the Myelin is damaged. Legions can also be from Migrane Headaches, or from Brain Truama, they do not HAVE to be MS related. To determine if the legions are MSlegions, it does have to do with the shape, placement in the brain and pattern; however, the legions themselves are scar tissue.
I hope this helps..
Welcome to the board, Candi.
Your eye issues sound alot like Optical Neuritis. This is a very common aspect of MS, and is caused by the Optic Nerve being inflamed. It is very treatable, usually with steroids, can go away on its own, but is very painful and timely. Also, it can cause permenent eye damage/loss of color / and total vision. You should be seeing a good opthamologist, who will refer you to a neuro-opthamologist if necessary further testing is needed.
Neurontin, is probably the most commonly prescribed med for MS pain. ITs an anti-seziure drug, which is used to control nerve pain. for some, it works miracles, for me it does nothing! You should not stop it abruptly, as it should be weaned down or can cause seizures. Be careful how you go off of it. THe symtoms, the depression, etc, which you describe, are NOT Neurontin side effects, so you might want to further evaluate what might be causing the symtoms you are describing. I do think that seeing a specialist, is he a MS specialist at John Hopkins is an excellent idea. Make sure to take copies of your MRIs and the reports with you to save time.
I see a MS Specialist in NJ at Robert WOod Johnson and keep a local Neuro around for my meds...however, I always feel better having two opinions on what is happening with me.
Best of the best to you.
Nikki





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