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Hip pain
Jul 9, 2007
i was hoping some of you might be able to help me. i am undx'd at this time, but neuro is 95% sure it's MS. i have had hip pain in the past for months at a time that would go away on it's own and xrays and mri's showed no reason for it. My hips are loose (always have been) and they click alot. sometimes when i turn to walk, my feet don't always turn at the same time my upper body does and i'll feel a little twinge of pain.

well last thursday i was in walmart and when i was walking back to my car i noticed a tightness around my upper-upper thigh & hip area and then a pain when walking when that leg would be at the back. It has not subsided and what makes it really hurt is sitting on the toilet, bringing that knee up to my chest makes that hip feel like it's going to snap in two in the front, or bending over to tie my shoes or bending forward from a standing position, and it also hurts to stand with my weight on that leg (like when you hold a child on your hip).

i have sciatica that comes and goes, but this is not sciatica pain. i have bursitis on the side of that hip that comes and goes, but this is not a bursitis pain. It is definitely in the center and radiates a little over to groin area and the middle of my thigh in the back. It feels like it's swollen in there and full of fluid.

i'm in the middle of a followup for re-curring ankle pain from ankle surgery 2 years ago and now i probably have to go about this. not sure if i should see my neuro or go to another orthopedist because i believe the one i'm seeing for my ankle only specializes in the feet.

just was hoping for a little insight from some of you suffering with maybe the same thing.

thank you,
michelle
Re: Hip pain
Jul 9, 2007
Michelle.
Ive never heard of anything even remotely close to what you are describing as MS symptoms. Please dont get upset with me, but you are describing joint pain, or even arthritis type pain...not MS symptoms. Even the MS hug, which you sort- of described, lasts minutes, not hours and not days.....
I do hope you find out what is going on with you, sounds horribly painful.
good luck.
N
Re: Hip pain
Jul 9, 2007
Thanks Nikki,

I wasn't sure if what I am feeling in my hip/upper-upper thigh area was a muscle spasm as I do get painful cramps in both my hips. i was thinking this was a little more intense. It is very tight around that area. i am actually praying it just goes away because i don't need anything else on top of all i'm dealing with now.

my MS sx's are blurred vision that comes and goes, numbness and tingling in extremities that comes and goes, muscle twitches non-stop in my my calves and feet and have frequent twitches as well in my bladder, colon, arms and face, vertigo that comes and goes, and frequent migraines.

thank you for your input and hope you have a great day!

blessings,
michelle
Re: Hip pain
Jul 9, 2007
Weak hip flexors can cause this (I am going thru the same thing: ankle surgeries, hip pain esp when flexing/bending hip etc). Mine actually dislocates. My OS said MS can cause weak hip flexors and this is the result. I am working on it in PT. I may need surgery as my ball part of the joint is now torn up and acetabulum is also getting chewed up because I waited too long to get it addressed.

My OS said Yes it can be side effect of MS as in the weakness which can hit the hip region if you are having leg issues.
Re: Hip pain
Jul 9, 2007
forget to add-

of course it could also be a non MS thing and just a problem with back of hip. Go to an OS and get it investigated and take your films with you.
Re: Hip pain
Jul 9, 2007
Michelle,
Now THOSE symptoms sound like MS symptoms! I can now understand why you are leaning towards MS in general...

The way you described your hip pain, didnt sound like muscle twitches, but now with this additional information, it certainly could be. Are you taking any sort of muscle relaxers? Do they help at all?

I really hope you figure out what is going on, and know that we are here, if we can help!
Hugs,
Nikki
Re: Hip pain
Jul 9, 2007
Hi Neighbor Jane :wave:

Thank you for the input also. I was just so confused on whether i should see my OS, neuro, or rheumie! Go figure. I know past films have shown nothing in the way of arthritis or any deformity - but this was a sudden onset of bad pain, but not a first in the way of some form of hip pain. Thanks again and hope you are staying cool! Too hot here in VA, eh?


Nikki -

Sorry, i should've been more clear in those sx's (there are others too). I actually am on Flexeril, but it doesn't stop the cramping or even the muscle twitches, but with it I'm able to fall asleep, but staying asleep is a whole nother story! HAHA ;) . I'm in the "lets wait and see stage" since all MRIs and LP and bloodwork were clear, but sx's point to MS and he wanted to rule other things out first. Thanks again for your reply. I'm so glad to have found this board - it's been very helpful and encouraging.

Blessings,
Michelle
Re: Hip pain
Jul 9, 2007
HI Michelle and Welcome home :wave:

I can relate to the pain your describing. It hit me when the temperature started rising around here. I have had 2 fusions in my lumbar spine and one in my C-spine, and at first I thought the L-spine had gone bad again. It has to some degree but the pain is presenting at a different level than where my problem is. My ortho agrees with Jane in that MS does tend to affect the muscles and tendons making them weak and along with the muscle spasms it can be very painful. When I was on my last round of steroids the pain did subside quite a bit, of course it came back. I will do just about anything not to take them again so for the mean time I am dealing with it. I take Valium for the spasms and Kadian for pain control.

Hope your feeling better soon, and glad to see you back on line
Kt
Re: Hip pain
Jul 10, 2007
Hi Hope :wave:

I am currently undx'd for MS, but am dx'd as:

Fibromyalgia
Raynaud's
Sjogren's
Insterstitial Cystitis (IC)
Hypothyroid
UCTD (Unspecified Connective Tissue Disease)
tendonitis
TMJ
Migraines
Heart palpitations

My neuro told me that he personally does not like the dx of Fibro. He says it tells him that the doctor does not care enough about the patient to investigate further into what is causing the sx's.

You will find many on this board who were dx'd with Fibro first, then an MS dx came after that. But that's not the case with every Fibro dx for everyone.

It takes a good doctor-patient relationship in cases like ours on this board. i don't think you are getting that with the doctor you are seeing -- but that's just my opinion from what you've told us. be your own advocate though. i have often been made to feel that it was all in my head by doctors, but i knew something wasn't quite right and continued to try and investigate as sx's presented themselves.

wishing you well and hope you are doing OK.

blessings,
michelle
Re: Hip pain
Jul 10, 2007
Hi Michelle,

I am going to try one more time to find a "good" dr. I have the MRI and EMG tests coming up.

I do know that many Drs long ago didn't consider MS a real disease, it use to be all in your head. I think it will take time for Drs and everyone else to come around to Fibro being REAL.

I have noticed that many diagnosed with Fibro first do get a diagnosis of MS later down the road. That is why Im on this board along with the Fibro boards. I am keeping an open mind.

Thanks
Hope
Re: Hip pain
Jul 10, 2007
Hi Hope

Let me clarify too that my neuro also said that the dx'd fibro patient IS having real sx's, it's just lazy docs who don't want to find the reason behind them. He said fibromyaglia (to him) is a cop-out dx.

your sx's are definitely real -- you know your body and you are entitled to get the proper care and help you need by a compassionate doctor - not some nut job ;)

did you try the National MS Society website and find your local MS chapter? You can contact your local chapter for a list of neuros who specialize in MS. Hope this helps.

wishing you well.

blessings,
michelle
Re: Hip pain
Jul 11, 2007
Hi Jane :wave:

I can't believe how closely related our 'stories' are :eek:

I am about done with my rheumie also - she kept looking for signs of lupus and was only prescribing Flexeril for me for fibro. My neuro increased my dosage of it (still doesn't help other than make me fall asleep easy -- staying asleep is another problem!) so I don't believe I will need to see her. She did give me injections in my right hip for bursitis on the outer thigh and the sacrum area.

I know EXACTLY how you feel with the crutches (i opted for a walker with my clumsy self :D). I'm scared to death of reinjuring my left ankle that he did the repair on. i didn't need screws, it was salvagable as it was. he tightened it up pretty good. but i still have pain right over the area he did the work on (2 yrs later!) -- just him barely touching it was painful and when i put my full weight on that ankle it really hurts there -- he said possible scar tissue.

i know i have weak muscles and lax/loose joints. i also believe my interstitial cystitis (IC) is actually a neurogenic bladder. when i first got that dx my pain was so bad in that bladder and all my tests were positive for IC, but after i told the urologist i was being checked for possible MS, he was very interested.

so all of my musculoskeletal issues and neurological are starting to make sense and come together, just not enough yet to give neuro a clear path to make a firm dx of MS. i'm like you with many autoimmune dx's: raynauds, sjogren's, etc etc.

Do you get heart palpitations? Just curious.

We definitely need to make Hope an honorary citizen of VA! :D

Take care my friend,
Blessings,
Michelle
Re: Hip pain
Jul 11, 2007
Goodness! Yes, spooky--but I live in NM so haven't run into any of you in dr. offices.:)

I have orthopedic probs too, and had a 2 level lumbar fusion and laminectomy in 2005. At my 2 yr checkup I was still on the walker and still falling. Surgeon sent me to a neurologist who had me dx'd with MS within a couple of weeks.

I know the cause of my hip pain. Fell badly in mid May, and hauling myself up really strained the hip--might have torn something in there. It has slowly been getting better on its own, so I'm just letting nature take its course.

Daphne
Re: Hip pain
Jul 18, 2007
Saw the OS yesterday. The upshot is that my hips are having problems because of muscle strength & control. I am to add on a hip program in PT and hope that the neurologist can nail this down (my ortho is betting on MS or possibly MD). I don't have to come back for a hipcheck unless I or PT feel the need. PT will send my ortho reports so he can follow along my progress, add input etc. I do have to follow up with my foot ortho so I made that appt. Now we just have to figure out how to best do a foot/ankle, lower leg and now hip progrm all at the same time without one issue making the others worse:confused:

More PT... ugh. It has become my 'job' at least every M/W/F! Dr J said unfortunately my problem is that the muscles are unable to do thier intended job as they are not able to get the correct signals from the ol' brain/nerve/muscle pathway. He said to work as hard as I can to keep what I have without overexerting myself (as muscle fatigue will actually be a bad thing). He said there really is truth to th old adage of "use it or lose it".

Conversely, does this mean that if I sit on my fat as* and do nothing that it will get smaller and smaller over time? hmm...

ROTFL:D :D





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