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Multiple Sclerosis Message Board

Multiple Sclerosis Board Index

Thanks to you all for your input. It is amazing how much it helps to hear from veterans when you are navigating this kind of space.

I had my appt. and got pretty good news. As you all know, you can't really rule out MS, but he did say that:
[*]TN is an unusual way for MS to present, and when it does present like this, it is usually the whole nerve that is affected, not just one branch (so it would affect the whole face, not just the upper jaw). He didn't say it wasn't possible to present like this, but that in 30 years of practice, he'd never heard of it presenting this way.
[*]If I had come to him with these symptoms initially, the diagnosis of MS would not have even crossed his mind. I took that to be a pretty good sign.
[*]He thinks it is "benign trigeminal neuropathy" -- essentially he thinks the nerve got a little irritated being near a sinus cavity when I got a cold two weeks ago.
[*]He said I could get an MRI if I wanted to help with my sanity, but that he feels no need for one at this point.

Anyway, at this point, the way I look at it is that you can't diagnose it as MS without another symptom presenting anyway. So I will keep my eyes open for any signs, but really, how is that different from any other day of your life? Something could happen at any point, so why worry until there is something concrete to worry about. Easier said than done, of course, but that's my goal.

Thanks again for all your comments and support. This seems like a great community of people.


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