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Cherie, I found this really interesting, thanks. I fall under the catagory you described as the radial nerve..my ring and middle fingers, right from the knuckle to the tips are completely numb and very painful...I wish the word numb wasnt used- numb implies that you cant feel anything. I can feel it, and it hurts all the time! Its more of a burning numbness, and tingling, and sometimes kind of like an arthritis type pain...they havent been able to do anything for me at all.
I do NOT have any lesions on my Cspine or T spine, unless at last MRI (5 months) ago, they were still too small to notice..however, its been 2 years of MRIs every 6 months, and nothing has ever showed up. Strange, huh? I do have serious back pain in the muscle which also pushes against the nerves leading down the arm....last month, I had a steroid injection into the muscle, it was just starting to work when I was invovlved in the car accident, which threw everything out of wack..im curious to see when those muscles stop hurting if my back pain will subside at all...meanwhile, my hand is still just the same as its always been for the past two years...this was my onset symtom. The reason that I followd up with a doc, first ruling out Carpal Tunnel, then a pinched nerve...eventually showing lesions and a trip to a Neuro....the rest is history.
But thanks for explaining this to us..it helped me to put my pain into perspective.
Nikki
[QUOTE=MSNik;3617454]Cherie, I found this really interesting, thanks. I fall under the catagory you described as the radial nerve..my ring and middle fingers, right from the knuckle to the tips are completely numb and very painful...I wish the word numb wasnt used- numb implies that you cant feel anything. I can feel it, and it hurts all the time! Its more of a burning numbness, and tingling, and sometimes kind of like an arthritis type pain...they havent been able to do anything for me at all.
I do NOT have any lesions on my Cspine or T spine, unless at last MRI (5 months) ago, they were still too small to notice..however, its been 2 years of MRIs every 6 months, and nothing has ever showed up. Strange, huh? I do have serious back pain in the muscle which also pushes against the nerves leading down the arm....last month, I had a steroid injection into the muscle, it was just starting to work when I was invovlved in the car accident, which threw everything out of wack..im curious to see when those muscles stop hurting if my back pain will subside at all...meanwhile, my hand is still just the same as its always been for the past two years...this was my onset symtom. The reason that I followd up with a doc, first ruling out Carpal Tunnel, then a pinched nerve...eventually showing lesions and a trip to a Neuro....the rest is history.
But thanks for explaining this to us..it helped me to put my pain into perspective.
Nikki[/QUOTE]

Yes, "numb" doesn't describe it very well, does it? :(

It may be that you have some other spinal or radial nerve damage that is causing this . . . not necessarily related to the MS. Or, as you said, it may be that the MS lesions are yet too small to observe by MRI, but NOT too small to do their damage. :o

My spinal lesions are very large, about 2 sections AFTER healing from acute inflammation. They have been very active, so it makes things easier to figure out for me. I guess it would be kinda like the extremes of any spinal cord damage; from the Christopher Reeves scenario, right down to people who recover with no permanent damage.

Cherie
thanks for the link to this thread Cherie, it explains alot to me and what i've been going through

and the feeling that its not really numb is true also, there is some feeling there, but its more pain and tingling to the severe side, although i can't feel the keys much on the keyboard when typing this

i do hope it gets better for me, as being right handed and its on my right hand, fingers, arm and shoulder, it is pretty debilitating for the things i'm used to doing

the neurologist believes it will go away, which i hope it does, i know they always speak in a positive sense

thanks again
dave
Cherie
Here is my symptoms that are on this attack:

started with right side motor problems on May 10th, it escalated to the point that i walked with a limp and then over time that has gotten better, my legs are weaker the before the attack but have gotten better

almost at the same time i got tingling in my neck behind my ear, my ear lobe and down my neck in to my shoulder, this eventually over the past 8 weeks has went down my arm and to my hand, with only the top of my arm getting the numbness, but now my whole hand, fingers and thumb, it started as only my index finger and thumb

my neck, ear and part of my shoulder no longer feel numb, buy my outer shoulder still does and my hand has gotten worse

about 3 weeks ago i got some sensation issues in my left leg, but it has subsided some also

from the onset i started all of this with back pain just inside my shoulder blade on the right side, which from knowing someone with a C5C6 injury its a typical pain, which may have triggered this relapse as i started to get some headaches and neck pain prior to everything else
[QUOTE=DavidLeeK;3640812]Cherie
Here is my symptoms that are on this attack:

started with right side motor problems on May 10th, it escalated to the point that i walked with a limp and then over time that has gotten better, my legs are weaker the before the attack but have gotten better

almost at the same time i got tingling in my neck behind my ear, my ear lobe and down my neck in to my shoulder, this eventually over the past 8 weeks has went down my arm and to my hand, with only the top of my arm getting the numbness, but now my whole hand, fingers and thumb, it started as only my index finger and thumb

my neck, ear and part of my shoulder no longer feel numb, buy my outer shoulder still does and my hand has gotten worse

about 3 weeks ago i got some sensation issues in my left leg, but it has subsided some also

from the onset i started all of this with back pain just inside my shoulder blade on the right side, which from knowing someone with a C5C6 injury its a typical pain, which may have triggered this relapse as i started to get some headaches and neck pain prior to everything else[/QUOTE]

The weakness in the legs is more then likely not related to inflammation in your spinal lesion, since I would expect that tingling and numbness too if it was. Chances are you have inflammation in both your brain and spine (did the neuro mention whether the two lesions in your brain were enhancing?).

I do get weakness with my spinal lesion attacks, but I also have the other sensations at the same time when they are causing the problem . . .

Unlike brain lesions, spinal lesions (or damage of any kind to the spine) brings on very specific symptoms. The symptoms may be more or less severe, or all-encompassing, but the sensation that results from them is exactly as you have described with the tingling, numbness, (burning, shocks, buzzing...) in your neck, arm, hand, etc.

BTW, have you been checked for infection of any kind; a tooth?, bladder?, etc? Have you had a fever at all?

My first two attacks started in my feet, and traveled up to/above my chest over a period of 6 weeks. One time it "attacked me" one side at a time, the other it did one side to the chest, then did the other side. I was affected on BOTH sides of my body, every single part (what you are feeling in your arms/hands); that numbness, tingling, swollen feeling, etc. That was followed by 6 weeks of recovery (mostly). I had more recovery over the next 18 months though .....

What they called it the first time was "Transverse Myelitis", although in due time they realized that it was secondary, caused by MS lesions. I am going to attach a government link as you may find some simularity to what you are experiencing:

[url]http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm#41903234[/url]

The reason I asked about the infection though, is my third spinal lesion attack was quite different, and due to untreated infection. Like you, the "attack" kept coming on in various parts of my body, and just as I started to heal from one part, it moved to another. It still took about 8 weeks for EACH section to escalate and heal though. Just when I thought it was all done (and I had 3 weeks of almost recovery, twice), it started up again in some of the same places again.

I had been ignoring an "inflammed" tooth root, under a cap, for several months. When I finally had it removed, the attack let up once and for all.

Cherie





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