Re: Your experiences?

In 1997, I developed ON in the left eye and then numbness from the pelvis down and my left knee was buckling. I was hospitalized for 5 days, during that time I was given IV steroids and while on them, symptoms abated but when I came home from the hospital, I felt like a truck had run me over and this lasted several weeks. All-in-all, it was about 4 months before I felt "normal." All symptoms did do away. In the past 11 years, this is still my worst flare-up by far. The first and the worst-

I was pretty miserable during that time, not knowing what was going to happen but I'm still here and things are going pretty well. I am also a Type I diabetic so I will not, for health reasons, agree to any more IV steroid treatments. I have also tried neurontin and it did nothing for me but give my horrible side effects.

My worst complaint is fatigue. I am not on any conventional drugs to treat MS, instead I use diet and acupuncture and Chinese herbal therapies.

Welcome to the board and I'm sorry to hear about your diagnosis AND especially that the meds aren't helping... Keep us posted-