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:mad:who else suffers from both?
I do not suffer from both, just MS. I have a friend with scoliosis; I know how much it affects her.
I know how painful Scoliosis can be my friend also has it. I have MS; but
Don't know anyone who has both. My heart goes out to you. I can feel the fustration in your post.
How much degree of curvature is your scoliosis? Is the scoliosis causing you pain?

I've got scoliosis, but the degree of curvature is less than 30 degrees, so too small to really be treated for (other than braces as a child to stabilize it.) If the degree of curvature is too large, it can cause problems with lung capacity, or damage other internal organs. My friend's daughter had multiple curves, the largest of which was 80 degrees, and she had to have surgery where the doctor fused a large part of her back. They can do the surgery now without putting metal bars in, and recovery doesn't involve wearing a cast for a year like it did when I was a child (and one of my best friends had such a cast in high school.)

If you need information about scoliosis, try posting at a spinal disorders message board, you may get more help there. Or, try telling the folks here what problems you're having because of the complicating factor of scoliosis with MS.

Are your doctor's helping you at all?

Good luck to you,

Kay
Hi there;

I have both, scoliosis and MS. My scoliosis started when I was about 10. I ended up wearing a brace for several years and it did help some. I have an "s" curve. After having my 1st daughter, my upper curve started getting worse to the point I had a 50 degree curve and needed surgery. I had rods put in and a couple years after taken out as I was having issues with them. At this time, I have a few problems with my back aching at times, and not being able to bend, but thats about it. As for the MS, I was just recently diagnosed with this. I also have RSD (reflex sympathetic dystrophy) in my leg after my total knee replacement -which gives me a great deal of pain and issues with lack of mobility. I am hoping the MS does not proceed in this area also. I know scoliosis can be painful. Are you under a dr's care for the soliosis? Wish you luck and if you need to talk - please feel free to contact me. Hang in there. :wave:
Hello!!!
I am soo sorry that you are suffering so much! I am, however excited that you said that you have RSD/CRPS....
I have RSD/CRPS and am being investigated for MS. There has been a link proven by a study last spring by Dr Shulman linking a higher incidence of RSD/CRPS in MS patients. There was another Dr who indicated that it is actually not just a higher incidence, but 1 in 5 MS'ers who have it.
I posted about this and no one responded. I am wondering if some of the people my MS specialist has will develop CRPS later on in life. In 2000 patients with MS there is 1 so far and 2 if I end up having MS.
I think we need to get the word out to people with MS so they can get fast treatment to settle it down before worsening and spreading. Especially since this population is at a greater risk!!!!

Godd Luck
Hi, Sorry!!!
I have one more question for you...
I have been looking for someone with both RSD/CRPS and MS. Do you take DMD's??? Because we can't get hurt at all and needles KILL, what are you and your Dr doing??? How are you handling this?

Thanks sooooo much in advance!
Sorry to bombard, but I have been looking for almost a year for someone to get an answer.

Thanks
I have both but am so surprised that the condition goes along with the m.s. I was diagnosed with scoliosis at 12 yrs but never related the two at all. Maybe at the time the doctors had no clue.
[QUOTE=MSJayhawk;3896716]I do not suffer from both, just MS. I have a friend with scoliosis; I know how much it affects her.[/QUOTE]
[QUOTE=MSJayhawk;3896716]I do not suffer from both, just MS. I have a friend with scoliosis; I know how much it affects her.[/QUOTE]

New to posts & message boards. Thanks for reply anyway though.:wave:
[QUOTE=em68;3898934]I have both but am so surprised that the condition goes along with the m.s. I was diagnosed with scoliosis at 12 yrs but never related the two at all. Maybe at the time the doctors had no clue.[/QUOTE]

Dr.'s say scoliosis was there @ young age, but I've been very active and fit till this last yr., yr.1/2. I'm not sure about them having a connection, but rebif & fatigue make it hard to have intrest in phy.therapy. I've done fairly well w/ MS. Since this back issue it seems like a circle. Thanks for the reply
[QUOTE=sauce 007;3898984]Dr.'s say scoliosis was there @ young age, but I've been very active and fit till this last yr., yr.1/2. I'm not sure about them having a connection, but rebif & fatigue make it hard to have intrest in phy.therapy. I've done fairly well w/ MS. Since this back issue it seems like a circle. Thanks for the reply[/QUOTE]
Thanks 4 reply!
[QUOTE=supernova_krose;3897785]How much degree of curvature is your scoliosis? Is the scoliosis causing you pain?

I've got scoliosis, but the degree of curvature is less than 30 degrees, so too small to really be treated for (other than braces as a child to stabilize it.) If the degree of curvature is too large, it can cause problems with lung capacity, or damage other internal organs. My friend's daughter had multiple curves, the largest of which was 80 degrees, and she had to have surgery where the doctor fused a large part of her back. They can do the surgery now without putting metal bars in, and recovery doesn't involve wearing a cast for a year like it did when I was a child (and one of my best friends had such a cast in high school.)

If you need information about scoliosis, try posting at a spinal disorders message board, you may get more help there. Or, try telling the folks here what problems you're having because of the complicating factor of scoliosis with MS.

Are your doctor's helping you at all?

Good luck to you,

Kay[/QUOTE]

Not much curvature. treatment so far phy.therapy.I'm so tired from the MS& shots, i don't want to move...but of course the less active the worse the pain. :dizzy: I feel like this is a cycle! thanks for your post & luck as well.
[QUOTE=popstarrdiva;3898356]Hello!!!
I am soo sorry that you are suffering so much! I am, however excited that you said that you have RSD/CRPS....
I have RSD/CRPS and am being investigated for MS. There has been a link proven by a study last spring by Dr Shulman linking a higher incidence of RSD/CRPS in MS patients. There was another Dr who indicated that it is actually not just a higher incidence, but 1 in 5 MS'ers who have it.
I posted about this and no one responded. I am wondering if some of the people my MS specialist has will develop CRPS later on in life. In 2000 patients with MS there is 1 so far and 2 if I end up having MS.
I think we need to get the word out to people with MS so they can get fast treatment to settle it down before worsening and spreading. Especially since this population is at a greater risk!!!!

Godd Luck[/QUOTE]

They say scoliosis has been there since childhood20-25yrs. ago. I pulled or injured back and have yet to recover. I know less phy.thearpy=more pain, but it's sooo hard to do when your fatigue. If i treat MS i don't have the energy to treat back pain. thanks for info. i will gossip to all! good luck:wave:
[QUOTE=lindkaye3;3897803]Hi there;

I have both, scoliosis and MS. My scoliosis started when I was about 10. I ended up wearing a brace for several years and it did help some. I have an "s" curve. After having my 1st daughter, my upper curve started getting worse to the point I had a 50 degree curve and needed surgery. I had rods put in and a couple years after taken out as I was having issues with them. At this time, I have a few problems with my back aching at times, and not being able to bend, but thats about it. As for the MS, I was just recently diagnosed with this. I also have RSD (reflex sympathetic dystrophy) in my leg after my total knee replacement -which gives me a great deal of pain and issues with lack of mobility. I am hoping the MS does not proceed in this area also. I know scoliosis can be painful. Are you under a dr's care for the soliosis? Wish you luck and if you need to talk - please feel free to contact me. Hang in there. :wave:[/QUOTE]

dr.'s just want me to do phy.thearpy. it's kinda hard when you have no energy. thanks for reply, good luck also:wave:
I am using a passive exerciser. My first day lasted all but 5 minutes, but I have extended my time up to an hour. I purchased an Exercycle on an online auction.

Pool exercise might also help if the water is not too warm.
[QUOTE=MSJayhawk;3899073]I am using a passive exerciser. My first day lasted all but 5 minutes, but I have extended my time up to an hour. I purchased an Exercycle on an online auction.

Pool exercise might also help if the water is not too warm.[/QUOTE]

I should try this because I'm 1 of those MS'ers that gets over heated easily. They say water exercise is good for both MS ans back pain. Thanks!:)
Pool exercises are also good for RSD/CRPS....
Gosh, I feel so bad that you are going through all this..
If not too personal, may I ask if you use DMD's???? I just need to know what my options will be since we aren't suppossed to feel pain:(
If you injured your back, your pain may have nothing to do with your scoliosis. (I've dealt with back injuries before as well.) What kind of back injury do you have? If it's a sprain, it really will get better with time. You may need to try a different kind of physical therapy. I went to an office that used Myofascial therapy. It involved a lot of back massage, heat treatment, a tens unit, and even some chiropractic like manipulations, and then went on to strengthening exercises after the pain had subsided.

Swimming is also a good exercise when you've got back pain. You can also do water aerobics, which doesn't hurt as much in the water as the same motions on the ground. If you have a back injury, there are also medications that can help with the pain. One thing I was put on was a week long steroid treatment pack that helps reduce swelling around your spinal cord and reduce pain that way. If you have a very minor degree of curvature, the scoliosis itself is not likely the cause of your pain, it's the back injury. There were some other prescription anti inflammatories I was prescribed as well.

What kind of doctor have you seen for for your back injury? Just a GP may not be the best to go to, you should try an orthopedic specialist, even one that deals with sports injuries. The exercises the physical therapist gives you shouldn't hurt, and shouldn't be extremely taxing...but mainly consist of stretching and core muscle strengthening.

Your back pain and MS may have nothing to do with each other. You need to make sure your doctor don't just attribute your pain to MS, and not try to figure out what else is going on. Unfortunately, having MS doesn't preclude you from having other unrelated medical issues as well.

Good luck to you,

Kay
I have both, scoliosis since about 12. I wore a body cast for about a year, did not help. I have back pain all the time, in fact that's how I found out I had ms. Went to an orthopedic specialist, he ordered mri of cervical and lumbar, found a lesion in cervical spine which suggested ms. Then had the brain mri and have several lesions typical of ms. Spinal tap negative for o bands but high protein levels. Ms diagnosis was in 2005.

My neurologists prescribes vicodin for pain, which helps. I recently saw a ms specialist and he didn't think the 2 were related. I have a lot of numbness in my fingers and always thought that was due to scoliosis, but now I guess that is ms.

I kept doubting the ms diagnosis, because I felt like my symptoms were from my back problems, but the ms specialist said that it would not cause the weakness I have in my leg. I have an s curve with the most severe in the thorasic spine.

I am not taking any of the dmds for ms, I have used both copaxone and avonex. But now they say my ms is progressive, so I decided to give up the injections because of all of the side effects. I'm only taking vicodin and provigil which really helps with fatigue.

Good luck to you.
I too have ms,scoliosis, and perepheral neuropathy. I had the harrington rod surgery x3 because the hardware failed. I am 65yrs old and now looking at a terrible revision surgery. I don't know if I should have it or not?? Anyone?? I just received ms diagnosis 2 yrs ago
Thanks Kate
[QUOTE=kate j;4058735]I too have ms,scoliosis, and perepheral neuropathy. I had the harrington rod surgery x3 because the hardware failed. I am 65yrs old and now looking at a terrible revision surgery. I don't know if I should have it or not?? Anyone?? I just received ms diagnosis 2 yrs ago
Thanks Kate[/QUOTE]

:wave: Welcome Kate. As the post to which you linked is old and this is your first post, perhaps your own new thread would be more beneficial to you? As to any surgery, what will your quality of life be following the surgery and what risks are there? If your quality of life will improve and the risk is not high, then I would have the surgery. :angel:





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