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I completely disagree. The spinal tap is the last resort, and not always used....since you had an MRI, can you elaborate? Was it of the head and Cspine, and did they use contrast? If they did, they would have pulled you out before it was over, injected something into your vein in your arm and then sent you back for more pictures....contrast is usually used, because it will pick up very tiny lesions which sometimes dont appear on a film (without it).

A spinal tap, will show Obands, in some people, Obands usually point towards an infection or immune system issue, however its not very accurate with MS...if you have NOTHING on the MRI, and nothing on any other tests, and all your blood work (deficiencies etc) are normal, then they MIGHT want to do a spinal tap (or lumbar puncture) but it will take awhile to rule out everything else, before that is suggested....and even if it is, its not a conclusive test.

MS is diagnosed by ruling out everything else, and yes, allot of your symtoms do sound neurological, however there are hundreds of things which this could be, and not all of your symtoms sound like MS...the flu, for instance, has nothing to do with MS. The lack of appetitite, weight loss, acid reflux, none of these are MS symtoms, HOWEVER it cant be ruled out that the anxiety you are experiencing while dealing with this mess COULD very well be causing those things! It could be related, even if it isnt part of the disease. Does it sound like MS? 50-50 chance on this one...Id say that there are way too many things to rule out before you should be thinking it. Since there are no tests FOR MS, conclusive tests- your in for some serious work ups with the new doctor. My suggestion is that you start keeping a journal of what symtoms hit you, how long they last- what brings them on or helps relieve them...keep a journal with all the tests you have had done, the dates and places, and do your very best to keep copies of the results...Especially blood work and films (MRIs) and reports, these things will help when you change docs, so they dont have to repeat everything and if they do, they'll have a base to start from.
Your in NY? Some of the best MS docs in the world are in NY and NJ....consider finding a good MS specialist (you can ask for recommendations here) and start there. MS specialist both rule out AND diagnosis MS...
Wishing you well.....remember, you are not alone, we are here if we can help you!
Nikki
[QUOTE=MSNik;4008110]I completely disagree. The spinal tap is the last resort, and not always used....since you had an MRI, can you elaborate? Was it of the head and Cspine, and did they use contrast? If they did, they would have pulled you out before it was over, injected something into your vein in your arm and then sent you back for more pictures....contrast is usually used, because it will pick up very tiny lesions which sometimes dont appear on a film (without it).

A spinal tap, will show Obands, in some people, Obands usually point towards an infection or immune system issue, however its not very accurate with MS...if you have NOTHING on the MRI, and nothing on any other tests, and all your blood work (deficiencies etc) are normal, then they MIGHT want to do a spinal tap (or lumbar puncture) but it will take awhile to rule out everything else, before that is suggested....and even if it is, its not a conclusive test.

MS is diagnosed by ruling out everything else, and yes, allot of your symtoms do sound neurological, however there are hundreds of things which this could be, and not all of your symtoms sound like MS...the flu, for instance, has nothing to do with MS. The lack of appetitite, weight loss, acid reflux, none of these are MS symtoms, HOWEVER it cant be ruled out that the anxiety you are experiencing while dealing with this mess COULD very well be causing those things! It could be related, even if it isnt part of the disease. Does it sound like MS? 50-50 chance on this one...Id say that there are way too many things to rule out before you should be thinking it. Since there are no tests FOR MS, conclusive tests- your in for some serious work ups with the new doctor. My suggestion is that you start keeping a journal of what symtoms hit you, how long they last- what brings them on or helps relieve them...keep a journal with all the tests you have had done, the dates and places, and do your very best to keep copies of the results...Especially blood work and films (MRIs) and reports, these things will help when you change docs, so they dont have to repeat everything and if they do, they'll have a base to start from.
Your in NY? Some of the best MS docs in the world are in NY and NJ....consider finding a good MS specialist (you can ask for recommendations here) and start there. MS specialist both rule out AND diagnosis MS...
Wishing you well.....remember, you are not alone, we are here if we can help you!
Nikki[/QUOTE]

The MRI was only of the head and yes contrast was used. Does any one symptom jump out as MS or are there a few cluster of them that point toward it?

I am actually in PA at the moment, and that is where all of my testing has been done.





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