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I am SO worried I have MS and I was wondering if anyone can help me as I really think the Doctors are wrong and I am right – They say you know your own body well I am listening to mine.

I know this is a long post but could someone have a read and help me with some opinions thanks :)

I have had various health issues over the past 18 months, light headedness, gastro intestinal problems, throat issues.

I had an MRI done 2 years ago due to light headedness – Result was all clear.

I then felt light headed again 15 months later and then 6 months ago I had a Brain CT scan followed by a Brain MRI all again turned out clear. I had read about MS and asked my Neurologist if I have MS and he said in 95% of MRI’s MS shows if your symptomatic and I was possibly showing some symptoms. After the MRI he was happy it was not MS. I also had a huge range of blood tests CBC,s Immunity tests etc. all of which were clear. He ordered a MRI of my Cervical spine and that showed a bulging disc at C4/5 the report says:

[B][I]Bony alignment and marrow signal are normal C4/5 and C5/6 disc spaces are narrowed.
Broad based disc protrusion is seen alog posterior ad left posterolateral margin of C4/5 disc. Left C4/5 neural foramen appears severely narrowed. Suggest correlation with symptoms and clinical findings. Central canal only shows mild narrowing. right C4/5 neural foramen is midly narrowed.
Medial end of right C56 neural foramen is mildly narrowed. Small annular tear seen at posterior margin C5/6 disc.
Small central disc protrusion noted at C6/7 disc[/I][/B]

The concerning thing was the small finger is not affected by C4/5 issues

A month later I kept waking in the night with the left side of my hand feeling totally numb. As the weeks progressed this got worse, then went away for a few weeks then returned again with intensity. The feeling then started creeping up my arms and then across to my right hand and arm. I started getting tingling and prickly feelings in my fingers and arms. When I would go to bed I also started to get tingling in my feet. I also started to get a feeling of a lump in my throat but no lump was seen or detected by an ENT Dr. he put it down to a phenomenon called “Neuralgia”

This to me all pointed to MS. I had yet another disruption of the bowlels with pain and constipation and so I went back to an Ortho Dr and Neurologist. Because this numbness seemed episodal my Neuro got concerned and said this was all pointing to MS and so ordered more tests again which were:

1) Brainstem evoked Potential
2) Visual evoked potential
3) Somatosensory evoked potential
5) Brain MRI with and without Contrast
6) Cervical Spinal Cord MRI with and without Contrast
7) NCT
8) EMG

Again they all came back normal but the NCT and EMG showed some nerve entrapment and the Neuros report on the NCT/EMG said the following:

[B][I]Prolonged distal motor latencies of left median and left ulnar nerves may suggest proximal root lesions. Mixed nerve study shows that the latency of median nerve is prolonged compared to that of ulnar nerve. This suggests slowing of conduction over the wrist. Therefore, it provides electrophysiological evidence of left sided carpal tunnel syndrome.[/I][/B]

He says the chances of Carpal are about 50% but I dont think it is as I have my arms and legs affected!

The Neurologist again had a meeting with the Senior Radiologist and they both came back and said this is NOT MS as if I was this symptomatic with MS it would be very distinctive on the MRI images and that my Brain and Cervical Spine MRI showed ZERO evidence of any MS, additionally the fact that the Brain Stem tests are normal corroborates the diagnosis – I was told the brain Stem tests are pretty conclusive for MS too.

1 week on and my right leg is weak – it feels like I have exercised my calf muscle and has that weak feeling that you get after you have worked it in the gym. All my muscles feel twitchy and sometimes certain muscles are slightly trembly. Sometimes if I sit on the sofa my right leg feels like it is going to sleep. I am terrified as to what the hell is going on with my body. I am suffering severe feelings of nausea and I am certain these Doctors have it wrong and I do indeed have MS.

I wonder if anyone could give me any thoughts about this please – I am in quite a state

Cheers

Axa
Axa,

I was browsing posts looking for information on c4-5 disk herniation and your post immediately caught my attention because it all sounds so familiar only I started having the symptons 8 years ago. I was so sure it was MS even though I never once mentioned it to anyone, including all the doctors I have seen. Recently my family doc (new to the practice) came right out and called me on my cell and said he didnt think anything was wrong with me. I became an emotional wreck because I know something isn't right so i threw a fit and said I wanted to see a medical neurologist because I thought something was wrong with my nerves. I thought this because my most recent problems have been shaking in my hands and feet. So he made the appointment with the neurollogist for me and I hung up and made an appointmnt with a psychiatrist because I was really beginning to think that maybe it was all in my head.

I've been through it all as you have MRIs of every kind, tons of blood work, etc yet when I got to the neurologist, i failed the emg and nerve conduction tests in my legs. Back to the hospital for more MRIs I went.

I don't have MS - it has been ruled out with a lumbar puncture and two brain MRIs. I am being told that I have a herniated disk in my neck from an injury that took place years ago and it is pressing on my spinal cord. The thing is I don't have neck pain and I don't get headachs. My neck gets stiff but I always put that off as long stressful days at the office. The psychiatrist said my doc was wrong and that I needed to be treated for the pain in my legs. I have severe pain and severe restless leg syndrome which would keep me up all night most of the week. I started taking the meds a few months ago for rls and have been sleeping wonderful. As for the neurologist, he said my problems are all caused from my neck and that I should see a neurosurgeon because I amly only going to get worse.

My question to you or anyone is, did you find out what was wrong with you? does anyone have a C4-C5 disk herniation without the arm and neck pain?

my symptoms are: dizziness, leg pain, muscle spasms in the legs, joint pain, occasional numbness and tingling in face, arms, hand legs and feet, chronic dry eye and I have a blind spot in my right eye sever night sweats and a stiff neck. For the first 4 years I had extreme nausea and diarhea but mostly have that under control today (I was diagnosed with celiac disease but am in denial).

Looking for any Suggestions from anyone.

[QUOTE=Axa;4092178]I am SO worried I have MS and I was wondering if anyone can help me as I really think the Doctors are wrong and I am right – They say you know your own body well I am listening to mine.

I know this is a long post but could someone have a read and help me with some opinions thanks :)

I have had various health issues over the past 18 months, light headedness, gastro intestinal problems, throat issues.

I had an MRI done 2 years ago due to light headedness – Result was all clear.

I then felt light headed again 15 months later and then 6 months ago I had a Brain CT scan followed by a Brain MRI all again turned out clear. I had read about MS and asked my Neurologist if I have MS and he said in 95% of MRI’s MS shows if your symptomatic and I was possibly showing some symptoms. After the MRI he was happy it was not MS. I also had a huge range of blood tests CBC,s Immunity tests etc. all of which were clear. He ordered a MRI of my Cervical spine and that showed a bulging disc at C4/5 the report says:

[B][I]Bony alignment and marrow signal are normal C4/5 and C5/6 disc spaces are narrowed.
Broad based disc protrusion is seen alog posterior ad left posterolateral margin of C4/5 disc. Left C4/5 neural foramen appears severely narrowed. Suggest correlation with symptoms and clinical findings. Central canal only shows mild narrowing. right C4/5 neural foramen is midly narrowed.
Medial end of right C56 neural foramen is mildly narrowed. Small annular tear seen at posterior margin C5/6 disc.
Small central disc protrusion noted at C6/7 disc[/I][/B]

The concerning thing was the small finger is not affected by C4/5 issues

A month later I kept waking in the night with the left side of my hand feeling totally numb. As the weeks progressed this got worse, then went away for a few weeks then returned again with intensity. The feeling then started creeping up my arms and then across to my right hand and arm. I started getting tingling and prickly feelings in my fingers and arms. When I would go to bed I also started to get tingling in my feet. I also started to get a feeling of a lump in my throat but no lump was seen or detected by an ENT Dr. he put it down to a phenomenon called “Neuralgia”

This to me all pointed to MS. I had yet another disruption of the bowlels with pain and constipation and so I went back to an Ortho Dr and Neurologist. Because this numbness seemed episodal my Neuro got concerned and said this was all pointing to MS and so ordered more tests again which were:

1) Brainstem evoked Potential
2) Visual evoked potential
3) Somatosensory evoked potential
5) Brain MRI with and without Contrast
6) Cervical Spinal Cord MRI with and without Contrast
7) NCT
8) EMG

Again they all came back normal but the NCT and EMG showed some nerve entrapment and the Neuros report on the NCT/EMG said the following:

[B][I]Prolonged distal motor latencies of left median and left ulnar nerves may suggest proximal root lesions. Mixed nerve study shows that the latency of median nerve is prolonged compared to that of ulnar nerve. This suggests slowing of conduction over the wrist. Therefore, it provides electrophysiological evidence of left sided carpal tunnel syndrome.[/I][/B]

He says the chances of Carpal are about 50% but I dont think it is as I have my arms and legs affected!

The Neurologist again had a meeting with the Senior Radiologist and they both came back and said this is NOT MS as if I was this symptomatic with MS it would be very distinctive on the MRI images and that my Brain and Cervical Spine MRI showed ZERO evidence of any MS, additionally the fact that the Brain Stem tests are normal corroborates the diagnosis – I was told the brain Stem tests are pretty conclusive for MS too.

1 week on and my right leg is weak – it feels like I have exercised my calf muscle and has that weak feeling that you get after you have worked it in the gym. All my muscles feel twitchy and sometimes certain muscles are slightly trembly. Sometimes if I sit on the sofa my right leg feels like it is going to sleep. I am terrified as to what the hell is going on with my body. I am suffering severe feelings of nausea and I am certain these Doctors have it wrong and I do indeed have MS.

I wonder if anyone could give me any thoughts about this please – I am in quite a state

Cheers

Axa[/QUOTE]





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