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Multiple Sclerosis Message Board


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Hi Everyone. I am still in limboland. I have had symptoms for about 5 years and they have started to get worse. Balance issues, dizziness, weakness in hands and legs, nausea. Neuro hasn't dx me since my MRI is non-specific, LP normal, other tests normal. Have had 5 MRI's over the years all with and without contrast - all remained the same, no changes, cervical was normal. Granted, I haven;t been back to the neuro in over 1 year, so I am not sure if maybe this has changed. My husband and I haven;t been trying to get pregnant and I have focused on that. We are havign trouble so we turned to IVF and we did a cycle in Sept but it resulted in a miscarriage at 4 weeks.

I sometimes wonder now if having a baby is a good idea since my symptoms are starting to get worse, but I have my good days and I forget about it. Plus I am still not 100% sure it is MS, but most of my symptoms lead there. The only thing diagnostically is that have non-specific white spots on my brain MRI, but doc said they are not classical for MS.

I wanted to ask you all on here about a strange symptom I have been getting lately and it's scary. I have trouble taking deep breaths and shortness of breath with activity. Almost like my diaphram won't open all the way?? I do moderate excercise - ellptical, stationary bike, and have noticed it is hard for me to take a deep breath. I don't overexert myself either. I have also noticed it is hard to take a deep yawn. sounds weird, I know, but it's really strange. I sometimes get this even when I am resting. I wonder if it is my heart or something. I get chest tightness and a cold feeling in the chest too. Wondering if this is the MS hug or something, but the trouble breathing thing is really scary. I have an appt with my primary doc next week to check things out. I am not overweight or anything like that. I used to run and workout a lot. I have cut back due to these balance issues, etc, but I don't consider myself out of shape.

Sorry for long post....but any feedback would be great!

Rachel
[QUOTE=rachel4123;4117094]Hi Everyone. I am still in limboland. I have had symptoms for about 5 years and they have started to get worse. Balance issues, dizziness, weakness in hands and legs, nausea. Neuro hasn't dx me since my MRI is non-specific, LP normal, other tests normal. Have had 5 MRI's over the years all with and without contrast - all remained the same, no changes, cervical was normal. Granted, I haven;t been back to the neuro in over 1 year, so I am not sure if maybe this has changed. My husband and I haven;t been trying to get pregnant and I have focused on that. We are havign trouble so we turned to IVF and we did a cycle in Sept but it resulted in a miscarriage at 4 weeks.

I sometimes wonder now if having a baby is a good idea since my symptoms are starting to get worse, but I have my good days and I forget about it. Plus I am still not 100% sure it is MS, but most of my symptoms lead there. The only thing diagnostically is that have non-specific white spots on my brain MRI, but doc said they are not classical for MS.

I wanted to ask you all on here about a strange symptom I have been getting lately and it's scary. I have trouble taking deep breaths and shortness of breath with activity. Almost like my diaphram won't open all the way?? I do moderate excercise - ellptical, stationary bike, and have noticed it is hard for me to take a deep breath. I don't overexert myself either. I have also noticed it is hard to take a deep yawn. sounds weird, I know, but it's really strange. I sometimes get this even when I am resting. I wonder if it is my heart or something. I get chest tightness and a cold feeling in the chest too. Wondering if this is the MS hug or something, but the trouble breathing thing is really scary. I have an appt with my primary doc next week to check things out. I am not overweight or anything like that. I used to run and workout a lot. I have cut back due to these balance issues, etc, but I don't consider myself out of shape.

Sorry for long post....but any feedback would be great!

Rachel[/QUOTE]

Have you been checked for asthma? I know I get symptoms like you describe and I have asthma. Try not to get too anxious about your breathing trouble, I know it is easier said than done. Anxiety can cause breathing difficulties to worsen. I hope you are feeling better soon. Wishing you the best.

Positive Thinkin





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