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Multiple Sclerosis Message Board

Multiple Sclerosis Board Index

I am not diagnosed with MS, I have had alot of tests but nothing conclusive. From what I understand MS can mimmic other diseases and vice versa. However I am not getting any better, and so this leads to yet more frustration, not because I need a name, but a diagnosis would help when it comes to maybe getting treatment. It wouldn't change whats happenning but it would help.
I also understand whilst there are symptoms that are pretty much consistant with MS, different people do have different symptoms to.
Is it considered an inflammatory disease?. I have definate symptoms and not to good at explaining them but they are more consistant now as time has gone on.
It has been just over a year since I saw a neurologist. The door was closed on me due to the fact that no one could identify what was wrong with me. I didn't quite fit the MS criteria or anything else for that matter. I did have some positive tests but this wasn't enough to diagnose a specific diagnosis. I can understand that. After all, if a diagnosis is to be made eventually I want them to get it right.
I am SO tired though, there are times when I can hardly function. The tiredness is extreme. My friends and family have commented lately on just how drawn, pale and ill I look. I see it myself and wonder what on earth is going on. I am getting foot cramps now, not something I had before. I get nerve pain, at least my GP says its nerve pain. I get areas on my body that are hypersensitve to touch, eg; on my legs and on my head. Today the dizzyness was awful, I found it difficult to focus as the ground seemed to moving beneath me. My body is drained of any tiny amount of energy I have. I feel each day is becoming a marathon. I can walk, but I am tired out very quickly and often feel I am on the point of collapse. I get nausea, I can cope with it, but its like a burning sensation. I get cluster headaches and nothing will help them at the moment. My neck is stiff, my arms ache, the upper muscles in my arms, using the hairdryer feels like I am trying to weight lift.
Doesn't that sound pathetic!. I have to be careful when i wake in the morning because if I stretch like any normal person would the pain in my legs and arms is terrible. I have to stretch gently and almost do a warm up before getting out of bed.
I did test positive when I had a lumbar puncture, they found O Bands in the CSF, but with only one brain lesion it wasn't conclusive.
I have a tremor, not all the time, and when walking does become difficult, I tend to shuffle, so I can negotiate the path ahead. My blood pressure is very low, and it takes me longer these days to assimulate information, or I can't remember.
The other day when I was out shopping, I felt very unwell, very weak, cotton wool in my head, but I had to get groceries. I somehow ended up down an aisle knocking over every jar of mint sauce that was on display. I really don't know how it happened and was stunned when it did.
Does MS produce memory problems, is it painfull?. Do you feel weak and tired?
Sometimes I can't even get my words out, its like I know what I want to say but I can't get it out. Very frustrating. I get muscle spasms but they happen more when I am tired, nothing much to worry bout there.
I no some people with MS have a problem with grip, my grip is fine, not as strong as it used to be and I do get pain in my hands, but I can grip. My feet are fine, I just get cramps. My posture isnt good but like us all I am getting older. Just don;t like the electric shock feeling I get at times from my neck down.
Do you feel ILL with MS? Please excuse me if that sounds like a really stupid question, but does it?. Or is it more a physical thing?
My GP has had me on and off steroids this last year, as its the only thing that seems to help bring me back up a little, although the last two doses didn't do very much.
I have never been a lazy person and I do actually enjoy life. I enjoy every good day for what it is. I do get payback if I do to much, but I refuse to stop, that would be a total cop out and its just not me.
I am hoping very soon to get some help, maybe you guys can help me, point me in the right direction, advise me.
Sorry for the long winded post, but thatnks for reading.

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