It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board


Multiple Sclerosis Board Index


Hi Leah. Could you have something else going on?.....I have over 50 lesions on my brain, also take Rebif 44 mcgs (have for 4 years) and have quite a few of the same symtoms that you have....however, I function better then you describe. Although I trip over my words now and then, and have a little bit of cog fog- I manage. I work 50+ hours a week, raise a family and am going to college for my doctorate degree. I am quite aware that where the placement of the lesions are in the brain can affect the disease, however 5 lesions is practically none- most MS patients cant count the number they have in their brain....they all start jumbling together! So, try not to think of 5 as allot- thats very few in the grand scheme of things...youll psych yourself into anxiety attacks if you truly believe that 5 lesions is the end of the world.

A Spinal Tap is not a definative dx for MS by the way, its simply a tool which states that you have the Obands, which can point towards a autoimmune disease, it cannot tell you that you have MS. Rebif, obviously isnt supposed to get rid of your symtoms, but to stop progression of new ones. Its also very important that in the first year, you get blood work drawn every few months...are you doing that?

You absolutely need another MRi, call the local MS society and talk to them about what you are facing financially...they can help you with that. You asked about something stronger. There are only 4 drugs on the market which are injectables and approved for MS. Youre on the strongest one of all. The next step would be Tysabri, which might be where you are headed; however you really cant begin to figure that out without a doctors thoughts. Tysabri is given in the hospital, at an infusion center and requires MUCH follow up and blood work.

Please take care of yourself, I can hear the anxiety in your post and that wont help MS symtoms...
N
[QUOTE=MSNik;4165006]Hi Leah. Could you have something else going on?.....I have over 50 lesions on my brain, also take Rebif 44 mcgs (have for 4 years) and have quite a few of the same symtoms that you have....however, I function better then you describe. Although I trip over my words now and then, and have a little bit of cog fog- I manage. I work 50+ hours a week, raise a family and am going to college for my doctorate degree. I am quite aware that where the placement of the lesions are in the brain can affect the disease, however 5 lesions is practically none- most MS patients cant count the number they have in their brain....they all start jumbling together! So, try not to think of 5 as allot- thats very few in the grand scheme of things...youll psych yourself into anxiety attacks if you truly believe that 5 lesions is the end of the world.

A Spinal Tap is not a definative dx for MS by the way, its simply a tool which states that you have the Obands, which can point towards a autoimmune disease, it cannot tell you that you have MS. Rebif, obviously isnt supposed to get rid of your symtoms, but to stop progression of new ones. Its also very important that in the first year, you get blood work drawn every few months...are you doing that?

You absolutely need another MRi, call the local MS society and talk to them about what you are facing financially...they can help you with that. You asked about something stronger. There are only 4 drugs on the market which are injectables and approved for MS. Youre on the strongest one of all. The next step would be Tysabri, which might be where you are headed; however you really cant begin to figure that out without a doctors thoughts. Tysabri is given in the hospital, at an infusion center and requires MUCH follow up and blood work.

Please take care of yourself, I can hear the anxiety in your post and that wont help MS symtoms...
N[/QUOTE]

LOL....No I had a spinal tap...besides ,as for the lesion thing...I havent had an MRI in 2 years!!! So I wouldnt know how many lesions I have at this point in my life.
I have no medical insurance and my lifestyle (STRESSFULL ) is less then to be desired for sure!! I stress every day how to get away and go back to live with my family. That may help me a lot!!
But as for Lesions..Im sure they are as you said...in very high count as of now.
Ill try to keep posting..like I said I have an appointment soon and I will ask for another MRI.
Thanks for responding:)





All times are GMT -7. The time now is 11:52 PM.





© 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!