It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board


Multiple Sclerosis Board Index


MS Limbo
Aug 12, 2010
Hi, im 34 years old and ive been unwell now for 5 months, it all started back in march when I started to notice that I had very stiff leg muscles in the mornings and a stiff aching back across shoulder blades in the late afternoons and evenings, then I started itching everywhere and came up with hives all over my face which itched like crazy, I went to my GP who didn't feel the itching and back pain were related so put me on a course of steriods. After 2 days of steroids I started to have panic attacks and ended up calling an ambulance, my skin was burning from head to toe, I had pain in my back, chest and left arm and ribs, I was rushed to hospital and had an ECG, chest xray and blood tests, but all came back normal, so they sent me home. The panic attacks and pain continued so I came off the steroids. The panic attacks then stopped but the other symptoms remained, the burning skin was the worst symptom and it seemed to effect my entire body! I went back to my GP who then ordered the usual blood tests, all came back normal apart from my white blood cell count was slightly elevated and so was my immuglobulins. The doctor told me I must have a virus and gave me some antibiotics. I took these for 2 weeks, but more and more symptoms started to develop. I have deteriorated over the last 5 months and have seen reumatologists, neurologists, pain specialists, private GPs and nobody knows what is wrong with me. My symptoms to date are as follows:-

Vertigo
Night Sweats
Pain in knees, feet, hips, toes, back, neck, shoulder, left arm
Numbness Left arm and fingers, toes, face
Band sensations around stomach and head
Pressure in my head
Pain in the eyes
Pupils dilate to different sizes
tight strangling feeling around neck
Itching, crawling sensations all over
Hives on face
Sore throat
Swollen glands
Stabbing pains in the breast
Rib and underarm pain on left side so severe like being cut with a knife
Nausea
Flu symptoms
Twitching of feet, hands, eyelids and lips
Out of body feeling in head
shortness of breath
Fatigue
Wet cold sensations in legs
Gastro problems at night, choking feeling
Weight loss 2 stone
pins and needles in arms, hands, legs and feet

I have had several tests done so far, MRI of brain and spine which were clear, A CT scan of chest and abdomen, all clear also, Blood tests for things like lupus, lymes, parvo virus, vit B12 etc all clear, though my white blood cell count and immuglobulins still remain slightly elevated, I had a nerve conduction study test this week, am still waiting for results of this one. My Life is completely on hold, I have 2 young children and have found it so hard to cope I have now had to hire a nanny to help out at home, I spend most of my life in bed in pain, and when I do venture out I feel dizzy and my eyes feel strained. Its all been a complete nightmare, and I am still in complete limbo as to what happened to me. My family are suffering, as we all live and breath this awful condition everyday. Ive been told by all the specialists ive seen that this is not likely MS as there are to many symptoms, without any remissions, but I just don't know what to think anymore. I pray everyday for a miracle to make the symptoms stop, so that I can enjoy my life once more, and watch my children grow. I sometimes feel like im actually dying it has gotten so bad. I do question the Lymes disease test which I had done as I know these can bring up a lot of false negatives, but all the specialists ive seen dismiss me regarding this. Has anyone else experienced all of these symptoms so quickly with MS? Any advice would be so much appreciated.
Re: MS Limbo
Aug 17, 2010
Thank you for your post. I have 9% of your symptoms. I've had a nerve conduction study/EMG, back MRI and only minimum neuropathy and arthritis. The numbness, tingling,loss of touch,coldness and vertigo is very troubling. I've been on this quest and everything is negative. I am due to see a neurologist tomorrow.




[QUOTE=littlehutton;4306091]Hi, im 34 years old and ive been unwell now for 5 months, it all started back in march when I started to notice that I had very stiff leg muscles in the mornings and a stiff aching back across shoulder blades in the late afternoons and evenings, then I started itching everywhere and came up with hives all over my face which itched like crazy, I went to my GP who didn't feel the itching and back pain were related so put me on a course of steriods. After 2 days of steroids I started to have panic attacks and ended up calling an ambulance, my skin was burning from head to toe, I had pain in my back, chest and left arm and ribs, I was rushed to hospital and had an ECG, chest xray and blood tests, but all came back normal, so they sent me home. The panic attacks and pain continued so I came off the steroids. The panic attacks then stopped but the other symptoms remained, the burning skin was the worst symptom and it seemed to effect my entire body! I went back to my GP who then ordered the usual blood tests, all came back normal apart from my white blood cell count was slightly elevated and so was my immuglobulins. The doctor told me I must have a virus and gave me some antibiotics. I took these for 2 weeks, but more and more symptoms started to develop. I have deteriorated over the last 5 months and have seen reumatologists, neurologists, pain specialists, private GPs and nobody knows what is wrong with me. My symptoms to date are as follows:-

Vertigo
Night Sweats
Pain in knees, feet, hips, toes, back, neck, shoulder, left arm
Numbness Left arm and fingers, toes, face
Band sensations around stomach and head
Pressure in my head
Pain in the eyes
Pupils dilate to different sizes
tight strangling feeling around neck
Itching, crawling sensations all over
Hives on face
Sore throat
Swollen glands
Stabbing pains in the breast
Rib and underarm pain on left side so severe like being cut with a knife
Nausea
Flu symptoms
Twitching of feet, hands, eyelids and lips
Out of body feeling in head
shortness of breath
Fatigue
Wet cold sensations in legs
Gastro problems at night, choking feeling
Weight loss 2 stone
pins and needles in arms, hands, legs and feet

I have had several tests done so far, MRI of brain and spine which were clear, A CT scan of chest and abdomen, all clear also, Blood tests for things like lupus, lymes, parvo virus, vit B12 etc all clear, though my white blood cell count and immuglobulins still remain slightly elevated, I had a nerve conduction study test this week, am still waiting for results of this one. My Life is completely on hold, I have 2 young children and have found it so hard to cope I have now had to hire a nanny to help out at home, I spend most of my life in bed in pain, and when I do venture out I feel dizzy and my eyes feel strained. Its all been a complete nightmare, and I am still in complete limbo as to what happened to me. My family are suffering, as we all live and breath this awful condition everyday. Ive been told by all the specialists ive seen that this is not likely MS as there are to many symptoms, without any remissions, but I just don't know what to think anymore. I pray everyday for a miracle to make the symptoms stop, so that I can enjoy my life once more, and watch my children grow. I sometimes feel like im actually dying it has gotten so bad. I do question the Lymes disease test which I had done as I know these can bring up a lot of false negatives, but all the specialists ive seen dismiss me regarding this. Has anyone else experienced all of these symptoms so quickly with MS? Any advice would be so much appreciated.[/QUOTE]





All times are GMT -7. The time now is 12:06 AM.





© 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!