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Multiple Sclerosis Message Board


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I finally got some of the anwsers I was looking for. I had my 6 month MRI and appoitment done yesterday and it showed the same lesions as last time and he said they were more defined this time. He said the reoccuring old symtoms plus the new ones indicate Im in the early stages of MS. Im glad to finally know but I also decided to change doctors because he kept saying it was too early for treatment but he never would say what for so I flat out told him at this point I could care less about treatment options. I said because right now I just need a anwser of what is wrong with me. I shouldnt have to ask. He should just straight up tell me. He told me because of my age and being outside alot helps increase my vit D that mine was slow progressive. Im not really sure how slow mine is because my eye sight is getting worse and on one of the test I wasnt even able to see the light that I was suppose to and he didnt even give me the results from that and told me to come back in 6 months. I also still have a problem of when I swallow my throat has a sore muscle feel to it. He said its not a problem unless it causes me to start choking.He then told me he felt like I was about to really start having some problems but never said why or how he could tell. I dont agree with some of the things he says so Im going to find a new neuro. I was just wondering if age really can have any effect on the rate things occur? Also has anyone ever taken a medicine to act as a stimuant to help with exhaustion? He wants me to take phentamine but I can even take it because I have high blood pressure. Any suggestions on what to try?
[QUOTE=msuracer;4327288]I finally got some of the anwsers I was looking for. I had my 6 month MRI and appoitment done yesterday and it showed the same lesions as last time and he said they were more defined this time. He said the reoccuring old symtoms plus the new ones indicate Im in the early stages of MS. Im glad to finally know but I also decided to change doctors because he kept saying it was too early for treatment but he never would say what for so I flat out told him at this point I could care less about treatment options. I said because right now I just need a anwser of what is wrong with me. I shouldnt have to ask. He should just straight up tell me. He told me because of my age and being outside alot helps increase my vit D that mine was slow progressive. Im not really sure how slow mine is because my eye sight is getting worse and on one of the test I wasnt even able to see the light that I was suppose to and he didnt even give me the results from that and told me to come back in 6 months. I also still have a problem of when I swallow my throat has a sore muscle feel to it. He said its not a problem unless it causes me to start choking.He then told me he felt like I was about to really start having some problems but never said why or how he could tell. I dont agree with some of the things he says so Im going to find a new neuro. I was just wondering if age really can have any effect on the rate things occur? Also has anyone ever taken a medicine to act as a stimuant to help with exhaustion? He wants me to take phentamine but I can even take it because I have high blood pressure. Any suggestions on what to try?[/QUOTE]


Hi

Im so sorry to hear about your diagnosis, however at least now you know what you are dealing with, which is a positive thing.

I cannot offer you too much advice because I have not been diagnosed with MS (yet) but what I would say is, that you really should try and get yourself a Neuro that you feel comfortable and happy with, I think this is so important. Is your current Neuro even an MS specialist?

I have encountered many obnoxious and uncaring doctors throughout my diagnostic journey and they can make matters so much worse for the patient.

I'm surprised that your Neuro has stated what type of MS it is at this stage, and what did he mean when he said he felt like you were going to really start having some problems? It doesn't really sound like this guy knows what he is talking about, and the sooner you see an MS specialist the better, make sure you have copies of your MRI's so that you can show them to your new doctor and get a second opinion.

Best of luck :)





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