It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Multiple Sclerosis Message Board


Multiple Sclerosis Board Index


Over the last few months I've been having dibilitating symptoms that I don't think is just Fibromyalgia. Needless to say I've had a full body MRI that was clear- no lesions BUT the symptoms persist. I'm regularly having the tight, crushing feeling like the MS Hug. It starts in my upper back/chest (wrapping around my body) and moves down and when it gets to my hips I can't move. I kept feeling the chest tighteness and thought it was my asthma acting up and would take my inhaler w/no relief. I called my Rheumatalogist Friday asking for a referral to a neurologist; I don't want to disrespect him or his Dx but I feel like something is not right and I won't stop until I get some answers. It seems like if you don't fit certain criteria or have obvious conclusive results they simply say it's Fibromyalgia. The following are symptoms that I have felt over the last 9- 12 months and they still persist (When my dr read all of these symptoms he initially said possible MS):
1) Fatigued; cannot go to sleep or stay asleep
2) After I take a bath or get hot my body tingles, itches, I get light headed, my legs cramp up, feeling like something is crawling on me or up/down my spine and I feel completely drained.
3) Almost 2 years ago I started getting Tension/Migraines that range from dull to intense; stabbing feeling at the top of my head; Feels like a band is wrapped around my head; scalp tenderness and pain. I get nauseous and very sensitive to light and sound. My co-workers say my face swells. My first episode of this type of headace lasted almost 2 weeks and I was not able to go to work during this time. I can feel the headaches in my sleep.
4) Eye pain when I look around; floaters, blurred/doubled vision; light sensitive. Often my vision gets so bad that I can't read a text on my iPhone or see my 32 inch tv clearly
5) Taste buds distorted
6) Sometimes when I eat my jaws tighten up and the pain radiates down my neck into my shoulders.
7) Low back pain and spasms that make walking difficult
8) Numbing in my toes and heels
9) Ankles/feet pain making manuvering stairs difficult w/o grabbing the wall and rail
10) Body temp not regulated; fingers turn purple/blue and cramp
11) Insomnia
12) Shortness of breath: feels like my chest/ribs/upper back are being squeezed and my lungs can't expand
13) Feel off balance, dizzy/lightheaded while standing
14) Shaky hands
15) Nausea
16) Vibrating sensation like my phone is going off but it's not in my pocket; electrical twinges that radiate down my neck spine, arms, hands, fingers that creates constant numbing tingling sensations.
17) Numbness/tingling in my face/ on and around my lips like I had dental work done
18) Forgetful; cannot focus or retain information
19) Tongue feels heavy and numb; swallowing difficult at times
20) Difficulty emptying bladder despite feeling urgency to go; going frequently
21) No appetite
22) Arms/calves feel like they are in a blood pressure cuff
23) The sensation that something wet/water/sweat is on my skin
24) Legs hurt/ feel heavy making walking difficult esp. on my stairs
25) Strength gone in my hands, cannot open jars or bottles
26) Body tremors/ jerks even when sleeping
Sorry for the long post but I really think something is really wrong with me but it may be too early for the damage to be seen. I was Dx w/fibro in 2004 but over the last few months my symptoms seem to be in over drive. The dr thinks I'm over stressed. I hope I can get some answers from a neurologist.
I'm not really anxious about having/not having ms it's just a very stressful time in my life and I'm trying to deal with it. I located a MS Center in New Orleans and emailed them last night.
MSNIK, I hope this post makes reading easier.
Over the last few months I've been having dibilitating symptoms that I don't think is just Fibromyalgia. Needless to say I've had a full body MRI that was clear- no lesions BUT the symptoms persist. I'm regularly having the tight, crushing feeling like the MS Hug. It starts in my upper back/chest (wrapping around my body) and moves down and when it gets to my hips I can't move. I kept feeling the chest tighteness and thought it was my asthma acting up and would take my inhaler w/no relief. I called my Rheumatalogist Friday asking for a referral to a neurologist; I don't want to disrespect him or his Dx but I feel like something is not right and I won't stop until I get some answers. It seems like if you don't fit certain criteria or have obvious conclusive results they simply say it's Fibromyalgia. The following are symptoms that I have felt over the last 9- 12 months and they still persist (When my dr read all of these symptoms he initially said possible MS):
1) Fatigued; cannot go to sleep or stay asleep
2) After I take a bath or get hot my body tingles, itches, I get light headed, my legs cramp up, feeling like something is crawling on me or up/down my spine and I feel completely drained.
3) Almost 2 years ago I started getting Tension/Migraines that range from dull to intense; stabbing feeling at the top of my head; Feels like a band is wrapped around my head; scalp tenderness and pain. I get nauseous and very sensitive to light and sound. My co-workers say my face swells. My first episode of this type of headace lasted almost 2 weeks and I was not able to go to work during this time. I can feel the headaches in my sleep.
4) Eye pain when I look around; floaters, blurred/doubled vision; light sensitive. Often my vision gets so bad that I can't read a text on my iPhone or see my 32 inch tv clearly
5) Taste buds distorted
6) Sometimes when I eat my jaws tighten up and the pain radiates down my neck into my shoulders.
7) Low back pain and spasms that make walking difficult
8) Numbing in my toes and heels
9) Ankles/feet pain making manuvering stairs difficult w/o grabbing the wall and rail
10) Body temp not regulated; fingers turn purple/blue and cramp
11) Insomnia
12) Shortness of breath: feels like my chest/ribs/upper back are being squeezed and my lungs can't expand
13) Feel off balance, dizzy/lightheaded while standing
14) Shaky hands
15) Nausea
16) Vibrating sensation like my phone is going off but it's not in my pocket; electrical twinges that radiate down my neck spine, arms, hands, fingers that creates constant numbing tingling sensations.
17) Numbness/tingling in my face/ on and around my lips like I had dental work done
18) Forgetful; cannot focus or retain information
19) Tongue feels heavy and numb; swallowing difficult at times
20) Difficulty emptying bladder despite feeling urgency to go; going frequently
21) No appetite
22) Arms/calves feel like they are in a blood pressure cuff
23) The sensation that something wet/water/sweat is on my skin
24) Legs hurt/ feel heavy making walking difficult esp. on my stairs
25) Strength gone in my hands, cannot open jars or bottles
26) Body tremors/ jerks even when sleeping
Sorry for the long post but I really think something is really wrong with me but it may be too early for the damage to be seen. I was Dx w/fibro in 2004 but over the last few months my symptoms seem to be in over drive. The dr thinks I'm over stressed. I hope I can get some answers from a neurologist.





All times are GMT -7. The time now is 10:12 PM.





© 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!