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Multiple Sclerosis Message Board


Multiple Sclerosis Board Index


Hello, I think there was a miscommunication about my 2 year old I was not worried about her it was about my 17 years old the whole time. Sorry for that part. I realize the 2 year old does not understand what is going on however she does no when I am not feeling well, heck she sometimes know before I do. However with the hysteria part; this has been going on for 2 years actually a longer, however for the last 2 years it has got worse and I have declined to the point I can no longer work. Being in limbo-land is not good for your health; yes it does cause extra stress to the situation at hand. I have raised 7 children ages 25 to 13 so I deal very well with stressful events and went through a very bad divorce and custody battle. Now I am raising my 2 year old STEP-GRANDDAUGHTER who we will be adopting soon. SO I do know how to handle stressful events, I also realize they can take a toll on oneself. Therefore not knowing if I am going to wake up and not be able to walk, that is what I am so upset about, I have always been a person who has known my body and now I donít know it, which is what scares me. I have always been a worker and I canít right now, not knowing if I will ever be able to do what I love, I had to give up driving bus which was my life, then I had to give up my retail job which I also loved. The doctors have been dragging their feet with me and have not taking me serious I feel. I have always been a prevented kind of person. I feel letís get to the bottom of this and prevents any problems before they get worse. I myself had to call Cleveland Clinic my PCP told me to do it and if I need a referral he would give me one. Since 2000 after my last son was born, I had a broken leg and ankle that required surgery in 2002 I broke it from just tripping over a flower bed and fallen. I have 7 inch plate and 8 screws in my left leg, and pins in my ankle so my ankle would fuse back together which 1 of the pins broke and the surgeon told me not to worry about it that it would be more of a problem to go in an fish it out then it would to leave it a lone . In 09 I had one ovary and fallopian tube remove because the ovary was the size of a grapefruit and fallopian was the size of a sausage in a horseshoe shape; in 2010 I had colonoscopy because I had diverticulitis, Diverticula. I had both. I had full blown toxemia with my 1st son and almost died I had to have emergency C-section, my 2nd was VBAC and they had to pop my hip to get her out because she almost got stuck because she was bigger than they thought she was 9lb, My 3rd I had VBAC also but I had some kind of reaction to the epidural my blood pressure drop and I started to shake and pass out almost went into a seizure but they gave me some kind of medicine. So I have had some issues before but always have trusted my doctors and never question them. Otherwise I have been health, so when I was feeling ill and not right I trusted my doctor this time and was doing everything he said to do. However now it is get worse and I am getting NO where. It is like they are not putting the pieces to the puzzle together. I have my back issues could that have something to do with all of this or is that something total different. I have had severe migraine since 09. So yes I might me panicking a little or have some uncontrollable emotion at times, but I have been sick for 2 years now and unable to work or do really anything thing since Jan 26, 2013, so I have a lot of question and I need someone to talk to and help me through this, that has been through it. I do not know if I have MS, or some other autoimmune disease, But what I do know is I have be dx with Fibro, and OA, DDD, Stenosis, Myofascial pain, Chronic pain, TMJ, and that is fine, but no one can explain the eye problems I am having, memory issues (they blame it on a medicine but it was way before the medicine) or when I wake up paralyze in the middle of the night, or the legs issues, Muscle spasms and twitching is getting worse and I have it every day now and all night or what about my speech and handwriting. I try not to think about it, but itís hard not to when you get up to walk and you canít, or your hand and feet are cramping up. Or you have a spam so bad that you whole back bend backwards. I just want out of limbo-land. I also came back to this board because you and Jayhawk were so nice to me and would talk with me when I was having a bad day. It a shame I donít know where I belong; because I donít think I have fibro, I was diagnose with it in 03, and it is 13 now and I never was on medicine for it because I did not need it the only medicine I ever needed was for my back pain and migraines. I know I have a lot to learn, that is why I am here. Thank you for all of your support.
[QUOTE=2young4paininOH;5198312]Hello, I think there was a miscommunication about my 2 year old I was not worried about her it was about my 17 years old the whole time. Sorry for that part. I realize the 2 year old does not understand what is going on however she does no when I am not feeling well, heck she sometimes know before I do. However with the hysteria part; this has been going on for 2 years actually a longer, however for the last 2 years it has got worse and I have declined to the point I can no longer work. Being in limbo-land is not good for your health; yes it does cause extra stress to the situation at hand. I have raised 7 children ages 25 to 13 so I deal very well with stressful events and went through a very bad divorce and custody battle. Now I am raising my 2 year old STEP-GRANDDAUGHTER who we will be adopting soon. SO I do know how to handle stressful events, I also realize they can take a toll on oneself. Therefore not knowing if I am going to wake up and not be able to walk, that is what I am so upset about, I have always been a person who has known my body and now I donít know it, which is what scares me. I have always been a worker and I canít right now, not knowing if I will ever be able to do what I love, I had to give up driving bus which was my life, then I had to give up my retail job which I also loved. The doctors have been dragging their feet with me and have not taking me serious I feel. I have always been a prevented kind of person. I feel letís get to the bottom of this and prevents any problems before they get worse. I myself had to call Cleveland Clinic my PCP told me to do it and if I need a referral he would give me one. Since 2000 after my last son was born, I had a broken leg and ankle that required surgery in 2002 I broke it from just tripping over a flower bed and fallen. I have 7 inch plate and 8 screws in my left leg, and pins in my ankle so my ankle would fuse back together which 1 of the pins broke and the surgeon told me not to worry about it that it would be more of a problem to go in an fish it out then it would to leave it a lone . In 09 I had one ovary and fallopian tube remove because the ovary was the size of a grapefruit and fallopian was the size of a sausage in a horseshoe shape; in 2010 I had colonoscopy because I had diverticulitis, Diverticula. I had both. I had full blown toxemia with my 1st son and almost died I had to have emergency C-section, my 2nd was VBAC and they had to pop my hip to get her out because she almost got stuck because she was bigger than they thought she was 9lb, My 3rd I had VBAC also but I had some kind of reaction to the epidural my blood pressure drop and I started to shake and pass out almost went into a seizure but they gave me some kind of medicine. So I have had some issues before but always have trusted my doctors and never question them. Otherwise I have been health, so when I was feeling ill and not right I trusted my doctor this time and was doing everything he said to do. However now it is get worse and I am getting NO where. It is like they are not putting the pieces to the puzzle together. I have my back issues could that have something to do with all of this or is that something total different. I have had severe migraine since 09. So yes I might me panicking a little or have some uncontrollable emotion at times, but I have been sick for 2 years now and unable to work or do really anything thing since Jan 26, 2013, so I have a lot of question and I need someone to talk to and help me through this, that has been through it. I do not know if I have MS, or some other autoimmune disease, But what I do know is I have be dx with Fibro, and OA, DDD, Stenosis, Myofascial pain, Chronic pain, TMJ, and that is fine, but no one can explain the eye problems I am having, memory issues (they blame it on a medicine but it was way before the medicine) or when I wake up paralyze in the middle of the night, or the legs issues, Muscle spasms and twitching is getting worse and I have it every day now and all night or what about my speech and handwriting. I try not to think about it, but itís hard not to when you get up to walk and you canít, or your hand and feet are cramping up. Or you have a spam so bad that you whole back bend backwards. I just want out of limbo-land. I also came back to this board because you and Jayhawk were so nice to me and would talk with me when I was having a bad day. It a shame I donít know where I belong; because I donít think I have fibro, I was diagnose with it in 03, and it is 13 now and I never was on medicine for it because I did not need it the only medicine I ever needed was for my back pain and migraines. I know I have a lot to learn, that is why I am here. Thank you for all of your support.[/QUOTE]

I forget to mention that I also had epidural injection and facet injection from 2011 till Sept 2012 after my last facet injection things got intensely worse.
Thank you Jayhawk for you response, it means a lot to know there are understanding people still out there. I am glad you are willing to just sit by with me and take this ride of limbo - land. I always hated not knowing where I was going in the car, so can you imagine what I am going through right now. My doctor appointment is Monday and I am scared [email protected]%T. I still don't know what to ask him. All the question I have and not sure what ones are the most important. He is the neuromusclear doctor. Any suggestion? Once again thank you for you thoughtfulness and being there. The pain has been so overwhelming. I don't know if it because of all the rain and storms but it been really bad this week. Thanks again. P.S I have notice that recently when I write that my words are being wrote backards for ex. I am suppose to go to the store. I am suppose to go the to store. see what I mean in the second sentence to and the are backward. I have been doing this a lot lately, any thought to this?





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