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Also, I have problems with my words sometimes as well. They are right in my head, but come out twisted. I have had bloodwork done, and those came back with negative on Lyme, vitamin deficiency, Lupus and other mimics of MS that can show up in blood work.
Hello Pixiedust,
Im sorry you are having such problems. I will take the opposite approach though and say that the nurse had absolutely NO RIGHT to tell you that it was 99% anything. Nurses are NOT diagnosticians, and the criteria for MS is very specific.

You had several tests, all of which point towards this NOT being MS.

MS mimics several other diseases, over 400 to be exact. In order to get a MS diagnosis, you have to meet what is called the revised McDonald criteria, and this starts with MRIs and an exam. Since you passed the tests, there is no way any doctor (good or bad) can say its MS.....however, that doesnt mean that you wont have a repeated MRI down the road where something might show up. ITs still a possiblity.

You wrote "I could not stand up straight at all. I went home and the way I would describe the pain was like I was hit by an earthquake and I felt the aftershocks for 4 days afterwards." This isnt typical of the MS hug. The MS hug comes on quickly, ends quickly and sometimes repeats over the next few hours, but rarely lasts days. Its a squeezing around the bra strap area of your chest which takes the wind out of you, but actually isnt life threatening at all. It can come and go - but doesnt usually hang around for long. I get it once or twice a year, and its very sporadic, random- no real warning or reason when it happens.

If you have optic neuritis, it is inflammation of the optic nerve. Any decent opthamologist can tell you if you have it, or had it......not the guy who makes eye glasses, but a medical doctor who looks at diseases of the eye. I would make an appointment with an opthmologist and get it looked at - ON is extremely painful. It can cause blurriness, but usually it causes a blind spot, color blindness and definite pain when you move your eyes....it takes months to heal if left untreated. You mentioned that you are having insurance problems. I just went through a period of having my newest round of tests denied by my insurance company myself. I get that...but all it took was my doctor calling my insurance company and explaining why he wanted the tests run, and they approved it. See if your doctor will help you.

I know you want answers, but I wouldnt be quite so hasty to jump to MS at this time, there are too many other things to rule out...and the nurse never should have put this into your head.

I hope you feel better.
NIkki
[QUOTE=MSNik;5242535]Hello Pixiedust,
Im sorry you are having such problems. I will take the opposite approach though and say that the nurse had absolutely NO RIGHT to tell you that it was 99% anything. Nurses are NOT diagnosticians, and the criteria for MS is very specific.

You had several tests, all of which point towards this NOT being MS.

MS mimics several other diseases, over 400 to be exact. In order to get a MS diagnosis, you have to meet what is called the revised McDonald criteria, and this starts with MRIs and an exam. Since you passed the tests, there is no way any doctor (good or bad) can say its MS.....however, that doesnt mean that you wont have a repeated MRI down the road where something might show up. ITs still a possiblity.

You wrote "I could not stand up straight at all. I went home and the way I would describe the pain was like I was hit by an earthquake and I felt the aftershocks for 4 days afterwards." This isnt typical of the MS hug. The MS hug comes on quickly, ends quickly and sometimes repeats over the next few hours, but rarely lasts days. Its a squeezing around the bra strap area of your chest which takes the wind out of you, but actually isnt life threatening at all. It can come and go - but doesnt usually hang around for long. I get it once or twice a year, and its very sporadic, random- no real warning or reason when it happens.

If you have optic neuritis, it is inflammation of the optic nerve. Any decent opthamologist can tell you if you have it, or had it......not the guy who makes eye glasses, but a medical doctor who looks at diseases of the eye. I would make an appointment with an opthmologist and get it looked at - ON is extremely painful. It can cause blurriness, but usually it causes a blind spot, color blindness and definite pain when you move your eyes....it takes months to heal if left untreated. You mentioned that you are having insurance problems. I just went through a period of having my newest round of tests denied by my insurance company myself. I get that...but all it took was my doctor calling my insurance company and explaining why he wanted the tests run, and they approved it. See if your doctor will help you.

I know you want answers, but I wouldnt be quite so hasty to jump to MS at this time, there are too many other things to rule out...and the nurse never should have put this into your head.

I hope you feel better.
NIkki[/QUOTE]

I failed the tests, I didn't pass them at the neurologist office. Also, I wasn't clear on the hug either. It felt like someone was squeezing me tightly and the pain was on off for 4 days, not continual.
Thirdly, the pain from when I had the razor blade across my eye thing, the optic neuritis you are talking about, vision is still blurry and yes, that eye does hurt when moving.
Lastly, the MRI I had done was only after 3 months of symptoms so I doubt that if there were lesions, they would have been big enough to be seen or none at the moment.
Thank you for the advice, but I have been tested for everything that could mimic MS and I have had all my tests come back normal that they tested thus far such as Lupus, vitamin deficiency, thyroid etc.
And sorry I mixed things up, but she was not a nurse, she was an ER doctor, my fault lol.





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