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Re: So far not MS?
Aug 11, 2014
OK, thank you. My neurologist is one of the best in the country so I assumed he knew what to look for. I just didn't know anything at all about MS 2 months ago. I'm learning as I walk through this process. I will think about taking my images and results to an MS specialist. Thanks.

Does anyone else on this forum have similar symptoms and nothing showing up on your tests as diagnostic of MS? What are the other common mimics? The only one I know of that matches my symptoms is fibromyalgia.
Re: So far not MS?
Aug 11, 2014
jc520,

Fibro symptoms can overlap with MS. There are some MSers with both MS and Fibro.

As to your symptoms, there are web sites and medical books which will note MS symptoms as a percentage of affected persons, but this cannot really be "fixed". For example 5% of MSers can or have experienced MS seizures. This is a rarer symptom. If you play the percentages, you can have an expectation which may not become a reality:
-bladder hesitancy------ Some MSers will have the same, but others may experience bladder frequency increases. For me, bladder frequency increases when I am under a build-up of stress.

-1 major episode of numbness on entire left side of my body (including left side of my tongue), lasted 30 minutes----- I have had numbness. Usually, MS symptoms will last for 24+ hours. While you might be cognizant of the numbness, even though you feel that the numbness went away, it may have just lessened in intensity. When I had numbness in 1982, it was a dullness rather than a numb (no feeling). My neuro used a pin to poke and make marks according to my answers. When he was done he had a "map" on my arm and told me that my symptoms followed my nerves. I had no knowledge of how I was wired, but he did. I have also experienced complete numbness too and I still do.

-several smaller episodes of numbness leaving my arms and legs feeling heavy----- This is not an uncommon symptom.

-weakness in legs---- I can well empathize!

-all over pain, (take several advil almost everyday and still miserable)----- If OTC pain meds do not work, this would point towards the probability of a neurological concern.

-super fatigued------- Yes, a very common complaint.

-difficulty with word-finding------- mental cognition can be quite common. I have cognition difficulty. For me, this can often be mental exhaustion. I need to rest my mind to recover.

-frequently cold when everyone else is not----- this can be MS related. MS can cause your body's internal "thermostat" to be on the fritz.

-anxiety with loud sounds or too many different sounds----- I do not have anxiety with the sounds, but certain sounds irritate me. I have a pair of passive ear protectors which help me.

-feel pain easily (every little bump and bruise)----- This is not an issue I deal with.

-neck/back nerve pain -------very common for me.

About 5% of MSers present initially without lesions initially. With no lesions or a single lesion, you would have to wait. CIS (Clinically Isolated Syndrome) can be a diagnosis where you have experienced MS symptoms, but do not yet meet the Revised McDonald Criteria.

Common mimics of MS could be something like a deficiency of Vitamin D. About 15% of people who present with MS like symptoms are found to have a deficiency of Vitamin D. Anxiety can be an MS mimicry, but it can also be part of MS. Many of the mimicries can be found through specific tests. If your tests have been negative (normal), then most of these mimicries would have been eliminated.

If you search the Healthboards search bar (upper right of this page), you can find threads that fir with you. Also, hopefully, someone will be able to share herewith too. There is also a fibro board which might provide some clarity too. Fibro and MS could come in tandem.

Keeping a symptom journal can help you. You can use it to track symptom onset and duration. Your journal can also benefit you as a summary when you visit with your doctor. I was able to discover my avoidable and unavoidable triggers as well as to tryout my remedies. Your "triggers" can be unique to you and your tolerance levels will be uniquely yours too. Hoping for the best for you. :angel:





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