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Hi everyone! I am reaching out to share some symptoms that have been getting progressively worse in hopes someone else knows/ or has experienced the same ones. I am trying to get any incite I can as some of them are alarming now. I do have an appointment with Neuro already scheduled but still wanted to share.

1) Feet become numb. When I walk I know I'm making contact with the ground but can't feel it, like when I had an epidural with the delivery of my son.

2. Vision is doing some wonky stuff. Sometimes I look at stuff and what I see shrinks and expands, its really quick and last a few seconds. Also I am getting "blinder" black fields of vision in my peripheral. Also eyes hurt and burn. Increased floaters...they are so bad....

3. Trouble gripping objects with right hand. I can't even grab the sheet on my bed and pull it to me. Just no strength, very weird sensation.

4. My face has started to tingle on the right side by my cheek and chin area. This started last night. Didn't hurt just felt like a thousands of little feather tips were brushing on my face.

5. Horrible tinnitus! Usually in left ear, but has now showed up in right ear. Also the most alarming one is the sound hallucinations. I will " hear" music. Usually old 40's bandstand music. I know I am not losing my mind. It is there. Also last night instead of music I heard what sounded like an old pinball machine game. I even went into my sons room to see if he was playing anything, and nope he was fast asleep.

6. I now get up 3-4 times a night just to pee. This has never happened. And every time it's like a downed gallons of water. At first I thought well maybe I have been drinking to much before bed...nope.

7. The newest scarier one is the sleep paralysis and now waking hallucinations. The other night I heard this loud buzzing by my ear, it "woke" me up and I sat up and saw what I thought was a giant mosquito hawk flying around. It almost had a glowy white silhouette. It scared me so bad I almost fell over the back of the couch. After about 45 sec I realized there was nothing there, and then burst into tears cause it felt like I'm losing my mind.

8. I also have bad joint pain, and experience shooting electrical pains down my arms and legs that go straight to my fingers, back of a knee, or into my feet.

I am experiencing hair loss again (so fun). My hands and feet are always cold. I have zero tolerance for cold weather anymore. Also showering now has to be done in luke warm water otherwise my feet burn so bad, and then the itching all over starts.

Also sometimes my neck muscles will get locked out, best way I can describe it after I yawn. This has happened twice now. I had random episode of losing my voice, was hoarse and croaky sounding with voice breaking, lasted about 2 days then returned to normal.

RA, Lupus, have been ruled out.

If anyone can relate or can shed some light I would be so greatful! Thanks!! Maggie H :angel:
Hello Mags H,

If you have not had your vision evaluated by an Ophthalmologist then please do so, the eyes are their specialty.

[QUOTE]Feet become numb. When I walk I know I'm making contact with the ground but can't feel it[/QUOTE]

In the case of Multiple Sclerosis your feet would be numb even when not walking. Numbness in Multiple Sclerosis is not affected by position. You cannot shake the numbness away and it doesn't matter if you sit, stand,or lay down.

Sleep paralysis and the hallucinations that can happen are really quite common. Many people deal with this and do not have any health issues. However, there are medications that can cause sleep paralysis as can sleep disorders. A sleep study could rule in/out a sleep disorder.

Tinnitus is very common and should be evaluated by an Ear Nose and Throat (ENT) specialist. This can also cause auditory hallucinations.

Hair loss can be caused by medications, health issues such as Thyroid but is not caused by Multiple Sclerosis. Hair loss experienced with MS is due to the Disease Modifying Drugs (DMDs) used in the treatment of MS.

Urinary problems should be addressed by a Urologist and do any necessary testing.

Joint pain is not a Primary symptom of MS but is a Secondary symptom due to mobility problems and spasticity.
Maggie,

I will go through your list herein and give you my non-medical opinion :)

If MS is a possibility, a general neuro should be replaced with an MS Specialist.

"1) Feet become numb. When I walk I know I'm making contact with the ground but can't feel it, like when I had an epidural with the delivery of my son."-

How long does this last? Is it only when you walk? It can be a cardiovascular issue or something as simple as a pinched nerve.

"2. Vision is doing some wonky stuff. Sometimes I look at stuff and what I see shrinks and expands, its really quick and last a few seconds. Also I am getting "blinder" black fields of vision in my peripheral. Also eyes hurt and burn. Increased floaters...they are so bad...."

Vision concerns should be seen by an ophthalmologist (an eye doctor with an MD, not an optometrist). The eye doctor can usually see you sooner than an MS Specialist and can evaluate your vision concerns. Optic Neuritis affects up to 20% of MSers, but those with ON may or may not develop MS. It was once thought to be the same but is now seen as a different chronic problem.

"3. Trouble gripping objects with right hand. I can't even grab the sheet on my bed and pull it to me. Just no strength, very weird sensation."

Is this something that corrects itself or does it last long (24+ hours). Again, this can be a pinched nerve too or can be a sign of a vitamin or mineral deficiency. This is a symptom that continually affects me 3-4 times a week.

"4. My face has started to tingle on the right side by my cheek and chin area. This started last night. Didn't hurt just felt like a thousands of little feather tips were brushing on my face."

Facial tingling or numbness can be an MS symptom. Look in the mirror and smile and see if your smile is even or lopsided. When I have "droopy face" my right side sags.

"5. Horrible tinnitus! Usually in left ear, but has now showed up in right ear. Also the most alarming one is the sound hallucinations. I will " hear" music. Usually old 40's bandstand music. I know I am not losing my mind. It is there. Also last night instead of music I heard what sounded like an old pinball machine game. I even went into my sons room to see if he was playing anything, and nope he was fast asleep."

My experience with tinnitus and MS in Pulsatile tinnitus which will persist for several days. Pulsatile tinnitus may or may not be MS related. It sounds like your heart beating in your ear or a helicopter approaching and departing. Big Band music? LOL, maybe your son likes Lawrence Welk or Glenn Miller?? :D


"6. I now get up 3-4 times a night just to pee. This has never happened. And every time it's like a downed gallons of water. At first I thought well maybe I have been drinking to much before bed...nope. "

This happens to me when stress is affecting me. One thing that may work is to cut off the bladder supply 2-3 hours before sleeping. This has helped me. Bladder issues may or may not be MS related.

"7. The newest scarier one is the sleep paralysis and now waking hallucinations. The other night I heard this loud buzzing by my ear, it "woke" me up and I sat up and saw what I thought was a giant mosquito hawk flying around. It almost had a glowy white silhouette. It scared me so bad I almost fell over the back of the couch. After about 45 sec I realized there was nothing there, and then burst into tears cause it felt like I'm losing my mind."

The buzzing sounds like my pulsatile tinnitus but yet different. Not sure about your hallucination or dream. Guys do not remember these things as well as women.

"8. I also have bad joint pain, and experience shooting electrical pains down my arms and legs that go straight to my fingers, back of a knee, or into my feet."

Sometimes the pain is felt at our joints, but it can in fact be related to muscles. A vitamin D deficiency can cause such pain too. A simple blood test can help.




Heat and or cold intolerance can also be MS related.

That all said. MS symptoms are not consistent with all of what you have shared, BUT you cannot dismiss MS and you can have more than one thing happening. There are over 400 known MS mimicries and an MS Specialist would have to eliminate all of these and then weigh you against the Revised McDonald Criteria.

While awaiting your appointment, see the eye doctor as well as your GP. Your GP can do a blood test to see if you have any deficiencies. About 15% of those who present with MS like symptoms are actually Vitamin D deficient and this is an easy fix.

Thanks for sharing :) I hope I have been able to help you and not muddy the waters :) :angel:





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