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Multiple Sclerosis Board Index
Pages: 1 2 Showing 1 - 20 of 33 for betaserone. (0.001 seconds)


... Two months into my copoxane. I am over the needle part but the reaction is really something...the 7 parts of my body sting and itch terribly and are welty like every day...when one heals the next one flairs. Basically I feel bad everywhere. What are thoughts on betaserone? The dr. originally suggested avonix but why not betaserone? The reason I am interested is that that one... (3 replies)
... to hear from anyone who is familiar with either of these drugs. Side affects, perceived efficacy, etc. I am pretty sure I will ask neuro. for a rx for the Betaserone as in the clinical trial for Fingolimod you have a 2 in 3 chance of getting the the drug and I'm not sure that would be the wise choice for me at this point. ... (3 replies)
... I am, after I get off here, going to see if my new insurance covers Betaserone as this is the med my neuro would prefer to see me on. If it doesn't then I will try the Rebif as it is a covered med. ... (10 replies)

... CCSVI - I heard there has been one patient that had a brain hemorrage (but was taking blood thinners). Another one had a travelling stent that went to the person's heart (had it removed & survived). I have heard many people, including doctors, have travelled around the world to get this treatment and I haven't heard of anyone unhappy with it. One MS patient (a medical... (3 replies)
... I use Avonex, same drug as Rebif just the earlier version. It is administered 1 time a week intramuscular. NO Redness, bumps, welts. Can't tell where the spot is that you injected. There are flu like symptoms BUT everyone reacts differently. Everybody had me so psyched out that it was going to be horrible. For me, the side effects are non-existant if I take Aleve or... (3 replies)
... ok, that makes sense why I didn't hear about betaseron, plus you have to mix it up. I'll seriously consider Rebif because you did say 3x a week allows your body to adjust more quickly. I'm freaky today because I am feeling my heavy leg I felt in Cancun. I need to let it go and just ignore it..... (3 replies)
... Beta, being one of the interferons, will give you horrible side effects until your body gets used to it. Its the oldest of the interferons, not as complex as Rebif or Avonex- but its "tried and true'. If you are really considering a interferon, why not Rebif, which is the easiest for your body to adjust to and has been proven for ten+ years now? None of them are easy to get... (3 replies)
... Hi all, Well, when last I wrote I was looking for input on going med free. I thank each of you who took the time to respond. I decided to stay med free. My body, however, had a different opinion. On Monday I was totally out of it, balance, vision and foot-drop (worse than ever) big time. Fortunately I already had an appointment with my neuro. scheduled for today (Wednesday... (9 replies)
... Thank you all for your responses. They certainly helped me calm down and re-evaluate my situation. Hotflash, after seeing how many relapses you have had I now feel a bit silly about complaining about my situation. Wow, you must be one tough bird. (That is meant as a compliment!) With all those relapses and you being in the trial has there been any thought about withdrawing... (16 replies)
... hey Neil old friend- First Im sorry you arent feeling so great, and second you need to know that FTY720 -- fingolimod, as it is known, isnt available anyway and isnt an option for you at this time, UNLESS you want to go back on the trials, and then its hit or miss if you are actually getting the drug. Id stay away from that option, since you said you can now handle a script-... (3 replies)
... I do not know anything about meds. As to the heat, that is a problem for me. Soak in cool water and look into a cooling vest if you are outside. I sleep under a ceiling fan and run the A/C in the truck. I have a cooling vest the MS Association provided via there lending program. As to leg cramps, this can be overcome with proper hydration and stretching. My mom found... (3 replies)
... That's a tough choice Neil. Fingolomid as I understand it is the oral version of the MS drug that is currently in clinical trials? You know your body better than anyone else, and making a drug decision is definitely a highly personalized one. For example, if I had the chance to try Fingolomid, even if it's a 2 in 3 chance, you have your neuro asking you more than 1 time... (3 replies)
Wow!
Dec 18, 2007
... Can't hardly explain the difference but it's like before you were dx with Ms,you had energy and think better. Memory is better. The other treatments like betaserone, copaxon and rebif didn't do that. I feel like I have a life now. Sorry it took a bit to reply but people are keeping me busy going shopping and the cold air is hard on me. (7 replies)
Just Diagnosed
Nov 5, 2007
... Hey Erin, Yeah, we did start ours at the same time - I was really wanting to try the rebif but my neurologist said she wanted me to start betaserone. I don't understand what the difference is. I wonder if I should just tell her I want to go on rebif? Hey Nikki - Are the needles small? I called her office today but they haven't called me back yet. Oh well! Thanks to... (12 replies)
Just Diagnosed
Nov 4, 2007
... Thanks for everyones support -I really love how everybody here is so kind and uplifting. I know we will all have our bad days but hopefully they will be few and far between. I will be starting the betaserone in the next couple of weeks - My neurologist suggested this particular med - I'm really nervous about it being done by injection - Does the doctors office do the first... (12 replies)
Just Diagnosed
Nov 3, 2007
... ally diagnosed on Oct 22, 2007. I knew deep down I had it but when you actually hear it from the doctor, it kinda knocks ya for a loop. So I am going to start on Betaserone and I am kinda nervous about it. All my symptoms have calmed down some but I still have left sided weakness. ... (12 replies)
... I am a 44 yr old male, married, amd dx'd with MS in 2004 - Optic Neuritis. Although I've had symptoms for about 10 years, I was always misdiagnosed (doctors often could not find anything). I often felt that the problem was neurological, but couldn't get a doctor to believe it. My sight has returned But like many of you, I have spams in my legs with numbness and weakness.... (6 replies)
Newly diagnosed
Mar 17, 2006
... Nathan....there is ALWAYS hope for your future! It sounds like you are in exaccerbation (sp?). It will pass. The problem is that we cannot predict how long it will take. I had a10-month flare when I was finally diagnosed. The medication combination that helped me get things under control was Amitriptyline (for pain and depression and to help me sleep), Advil (for... (6 replies)
Puzzled
Jan 7, 2006
... Please don't apologize for the questions...that's why we're all here, to help each other. By exacerbation, I mean something akin to a flare, though a flare is usually of shorter duration and an exacerbation is both longer in duration and can include new symptoms. By the way, while I am thinking about it...if you see the acronym CRABs on these boards (which always makes... (13 replies)
Puzzled
Jan 7, 2006
... I wish I KNEW why anything having to do with neurology involves such a long wait! My tests all got underway right away, but it took several months for the docs to determine the cause of my problems. It just seems they could at least speed up the testing phase, even if the diagnosis takes a little longer! Yes..I am using one of the MS meds..Avonex. There are four main MS... (13 replies)


Associated Tags: avonex, betaseron, copaxone, rebif

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