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Muscular Dystrophy Board Index
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... times, each leg. It's about all the leg exercise I can do. ... (17 replies)
... Does anyone else know about it? ... (17 replies)
... l like your legs will collapse you will be ready for the parking permit. I gave in a year ago. And I am one of the most vain and stubborn people ever born. After about 5 times using either, you get used to it and realize that people don't really think anything of it. Yes it's embarrasing at first but that goes away. ... (27 replies)

... I know exactly how you feel, I'm going through the same thing right now. It's nice to finally be able to talk to someone who I can relate to. I was diagnosed about a year ago, and still appear 'normal'. I havn't told most of my friends about it, and nobody even notices anything is wrong. ... (27 replies)
... to lift your grandson up, great. Miracles happen when God will's them. Our miracle is that my son is still alive, in body, mind AND spirit. No one wants to talk about it because they just don't know what to say about the elephant in the room. ... (5 replies)
... t know much about it. ... (5 replies)
... Finally I told my family that I needed to talk to the doctor about the problems I was having. I told my close coworkers and friends that I was experiencing some trouble and had an appointment to look into it. ... (5 replies)
... Hi, I made some RSS feeds from MD sites and put them on my desktop, so I have just spotted something about Miyoshi. ... (17 replies)
... Hi Mark, Thanks for your reply. I am 24 and was diagnosed 3 years ago. I have looked up the internet and got alot of information but this year has been been a good one to date. At the start of this year when I was in glasgow my knees went on me and a fell and broke a bone in my foot. Then 2 months ago the same thing happened and I broke my big toe. I usually have to... (17 replies)
... I'm sorry about your diagnosis. There is a lot of information on Dysferlin deficiency on the internet. ... (17 replies)
... hey there, my name is chelsea. I dont know much about Miyoshi Myopathy but I have Muscular Dystrophy. I have problems getting up and walking a long time things like that. ... (7 replies)
? about md
Jun 30, 2005
... However the symptoms you describe sound much more involved than a case of muscular dystrophy. I've read just about everything there is to know since my own MD diagnosis several years ago. ... (1 replies)
... There are certain people who, like you said, will change the subject or walk out of the room when I mention something about my MD. ... (5 replies)
... Some people don't know how to handle thing like that and getting bad news I hope they come around and face the facts about him my prays are with you and your family this is robocop wife seawind (5 replies)
... n say with all certainy that this is yhe most devastating thing I've ever had to face. Why are people so unwilling to face it or help us with our strong emotions about what is facing our family? ... (5 replies)
... Don't be afraid to ask about anything here. We all have issues with stairs,uneven walking surfaces,bathrooms,getting out of chairs,how to deal with the public etc. ... (5 replies)
... I'm really glad I posted here, the only people I've spoken to before about my MD are my doctor and my mum, and while they are very helpful and supportive, they of course can't fully understand what it's like. ... (5 replies)
... Hi Emma, I can understand some of what you are going through (The docs keep changing their mind about what I have, so I am not sure if I can totally relate to LGMD due to the fact that docs now think I might have Parkinson's). I can totally relate to hiding what is wrong from friends and family. I try hard so that people do not know that my balance is bad. I lean on a... (5 replies)
... have a disability, although they obviously realise something is wrong, I've been able to hide it okay until recently. I just can't bring myself to talk to anyone about it, because what I really couldn't handle is their pity. ... (5 replies)
... I talked to my MDA Clinic doctor last month about weight gain and how can I accomplish it without losing muscle. He said" You want the simple truth....Portion Control". He said not to starve myself. ... (17 replies)




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