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Message Board

Muscular Dystrophy Board Index
Pages: 1 2 Showing 1 - 20 of 32 for girdle board. (0.007 seconds)

... Hello! I just found this message board. Sounds like a great place to connect with others. Just a few months ago, I learned that there is an 80% chance that I have a form of limb-girdle muscular dystrophy known as Calpainopathy. This is all new to me. I had struggled for years with headaches and then, several years ago, I began having other problems like shortness of... (22 replies)
... I found this board while doing some searching about elevated liver enzyme levels and MD. ... (1 replies)
... Thank you for your reply, Mark! I stumbled across this message board a few months ago and enjoyed reading all your messages. When I finally joined the message board and posted my message, I knew I could count on you to reply. Thank you! ... (4 replies)

... Hello all, I'm happy to have found this board. It is nice to know there are others who "understand" me. I am 33 and have known that I have LGMD for about five years. I was very active as a child and in my teenage years. I played sports and participated in outdoor recreation but found I was often the slowest and gimpiest in the crowd. I always felt like I needed to... (22 replies)
... lilmom3 Hi. You might want to check out one of the threads I started a while back "Missing the things I used to do" listed under this MD board. Read all 3 or 4 pages......I have a feeling you'll be able to relate. Good luck to you, Mark (22 replies)
... i think this board is a great idea and special thanks to the moderator. ... (22 replies)
... :)Hi Paul! I'm glad that you found this board. To be able to talk ( write ) to others with MD or LGMD has helped me tremendously!!! Will search for follow up studies regarding your query. In the mean time, take care and never give up!!! *J* (22 replies)
... Hi Paul! I'm glad that you found this board. To be able to talk ( write ) to others with MD or LGMD has helped me tremendously!!! Will search for follow up studies regarding your query. In the mean time, take care and never give up!!! *J* (22 replies)
... :wave: hello everyone, im very happy to find this board. iv had a LGMD type disorder for most of my 57 years. like most of the listings i see here i never got a specific type diagnosis. now that it seems some treatments may be within reach i have become more curious as to my type. best i can figure LGMD 1C looks... (22 replies)
... Hey aphilk and J, I second your thoughts on the above posts. You've probably noticed that I DO try to post a lot. Basically whenever something's on my mind I'll sit down and post it here. Sometimes I'm frustrated, sometimes I hear some optimistic news and sometimes I just like to post helpful hints or observations. 95% of my posts are on the MD board. Left click my user... (22 replies)
... Welcome to the Board, *J*! You're right - it is a relief to be able to communicate with others who share our "conditions". It would be nice if more people would write though - lots of people read the posts, but only a few write, it seems. I just feel that if I have something to share, it may help at least one other person - even though I may not get any replys. Keep the... (22 replies)
... Four years now since I was diagnosed with muscular dystrophy but we still don't know WHAT KIND it is. For those of you who've been following my story and talking to me through this board, my tests came back from Bethesda where I participated in the N.I.H. Inherited Neurological Disorders study. Everything was negative! Very frustrating :mad: Nobody doubts I have MD. I... (9 replies)
... Hello, I have just been diagnosed with Limb Girdle MD. Like you, I inherited it from one parent, my mother. She inherited it from her father. ... (13 replies)
... Anyway, good luck to you. Keep posting.....even if it's just thoughts or feelings or a need to vent. This board is a great place to do just that. People here understand. ... (3 replies)
Jun 28, 2011
... Just found this message board today and am relieved to find other people out there who have the same feelings as me both good and bad. ... (23 replies)
... Hi clrcrw, I'm glad you found this board. I must agree with everything NP74 said. "NP" and I go way back and have long supported each other emotionally on this board. There are others that come hear often as well......all similar to your husband. I am in very much the same position as your husband. Except ,I am worse. I have been through his phase, probably about 3 years... (5 replies)
... Second, it's okay to vent. This is a great place to do it because everyone on this board is dealing with MD and understands. ... (4 replies)
An Update On Me
Jul 31, 2009
... This board has been pretty quiet lately, so I thought I'd just post an update on what's been happening on my end of things!! ... (7 replies)
May 13, 2009
... they are making real advances in treatments, especially DMD, and hopefully soon will find a cure. My 6 year old son was diagnosed with an unknown type of limb girdle md at the age of 3. ... (2 replies)
... Hi Randy, Hang in there, and welcome to the board. This is a great place to vent, get advice and share your story with others. My name is Mark and I'm a 48 year-old male with Limb-Girdle. Progressed now to the point were walking is barely possible. I used a cane for a few years but that doesn't cut it now because I can no longer lift my feet off the ground. My feet just... (18 replies)

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