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Muscular Dystrophy Board Index
Pages: 1Showing 1 - 8 of 8 for inclusion body myositis. (0.003 seconds)

... ebuild muscle. It does help to keep in touch with each other. Though mine is not grouped with MD, it is very similar to MD. There are very few comments on the Inclusion Body Myositis site. Not too commom a diagnosis, I gather. ... (6 replies)
... I have finally been diagnosed with Inclusion body myositis. Symptoms are much the same as LGMD and there is no cure or treatment. ... (6 replies)
Cpk 7335 tooo high
Mar 27, 2009
... I was recently diagnosed with Inclusion Body Myositis. It is similar to LGMD, with many of the same symptoms. My legs are weak, particularly in the upper legs. ... (3 replies)

... I was diagnosed in Sept of 08. I do water therapy and also go into the gym when I feel like it. I can tell my strength has started downhill, but I also missed a lot of therapy while we took a trip. I do not take anything, just therapy as they say there is nothing to take. Do you take any of the herbal things, if so do they help and what are they. I have trouble swallowing... (6 replies)
... Doris, it seems as though we are both experiencing IBM at the same stage of our life. I am 68 years. Did anyone else in your family have it? My mother and her father both had it. My mother was diagnosed as having polymyositis; but now that I have my diagnosis, doctor says she probably had the same thing. Our symptoms are the same; but she was a bit older than me when she... (6 replies)
... I also was diagnosed with IBM in Sept. 08. The Rheumatologist I went to had never had a case and does not know much about it except that there is no treatment that seems to help. I go to water therapy 3 times a week and work in the gym with arm and leg machines a couple of days. These things have helped but I still cannot climb stairs or get out of a chair easy. The water... (6 replies)
... Seems I put this in twice. Oh well, I'm not thinking too clearly. (6 replies)
... Casinogal -- I'm glad you finally got a diagnosis. I'm not familiar with this specific disease, but will do some research at some point to get a better understanding of what's happening with you. I'm sorry it's not something treatable. Unfortunately, most of us are in that boat. While knowing what it is and being able to put a name to it doesn't really change the... (6 replies)

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