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Muscular Dystrophy Board Index
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... However, I was originally diagnosed with FSH because of my unusual symptoms. ... (3 replies)
... I read your thread, and noticed that you are around the same age asmyself. I am a 45yr old female, and have had symptoms of FSH MD since I was 24 yrs old. I know have limited mobility due to leg muscles being affected in the last 11yrs. ... (3 replies)
Fsh md
Nov 23, 2009
... but I know that FSH affects the face and shoulders. ... (7 replies)

... I have FSH MD . I have lost a lot of strength in my arms and wrists. ... (6 replies)
... pcfshhunter, I am in my forties also . I am a female. None of my siblings were tested so I do not know about them and my parents passed away. What about you? Alot of my hobbies I can not do like I want toanymore. tennis, basketball, gardening. I have a dog. I love animals. What about you? MY legs are not as weak as my left hip. I am having a hard time dealing with... (6 replies)
... If you have a particular question... ask away. I'm not a doctor, just someone who has lived with FSH and watched many of my muscules disappear for the last 30 years. Hey... ... (6 replies)
... how to exercise when i have FSH MD and is a high protein diet good to try? ... (3 replies)
... and I was told I had FSH MD I figured I better get into a career that will allow me to sit infront of a computer and not be physically hard to do. ... (6 replies)
... I am glad you wrote back!!! My left arm became weak last year. But I am right handed. Now my left upper arm is starting to hurt and every time I use it too much it hurts. I am over compensating for my left arm weakness. My both parents passed away in 1980 and 1981. I do not know which one had it. This year I have been getting fatigued alot so I cut my hours down a... (6 replies)
... I also suffer from FSH MD. I can not get my arms above my head, have pain in my arms and shoulders. I also have great pain in my back. I have started to stumble and have even fallen. ... (6 replies)
... I have either FSH or Limbgirdle MD (doctor isn't sure but believes FSH). There has never really been a treatment. I take creatine and vitamins. I also exercise a good bit, but not sure anything makes much difference. I would gladly try any "alternative" type of treatment. (6 replies)
... Hi dawnuk, I mentioned in my earlier posts that I spent several weeks building an Excel spreadsheet. My data included 66 types of MD and all the characteristics & symptoms I could gather. I made this hoping to help diagnose my own MD...we still don't know. Sorry there's no way to share my spreadsheet but I did consult it and found a few MD types that can affect the face and... (6 replies)
Fsh md
Nov 21, 2009
... Interested in learning effective exercises for FSH -- Any insights would be appreciated. Thank you (7 replies)
... hey everybody...just found you all as well while looking for myo 029 info. i've been involved in research as a subject before in the fsh albuterol study. that was not so promising and really made folks aggitated. this sounds more hopeful. ... (9 replies)
... Hey sleepin, Thanks for the great story. I too am challenged w/FSH. I'm 41. My wife and I decided not to have kids because it would kill me to know I passed on the FSH to them (odds were pretty high). So I do tons of volunteer work with kids with disablities. And it's great! Just got back from taking a group to Universal in FL. Regarding your dad and fishing: They do make... (2 replies)
... Hi beagle, Excellent... Im also a dog lover! My wife and I have 2 English Springer Spaniels. Are u married/kids? My wife and I decided not to have children as I would freak if I gave them my FSH. After I was diagnosed my family was screened and I found out my dad had given it to me. Where is home? Are you near NY? As far as hobbies, I love the outdoors. Hiking (not as far... (6 replies)
... That said, the use of the machine certainly can't hurt. It can only help by keeping you as healthy as possible despite the FSH MD. ... (2 replies)
... Same here. They can't seem to nail it down but I have characteristics of several strains mainly LMG and FSH. I'm 53 now and it could have been much worse. It's wierd knowing I've had this for so many years (I was diagnosed when I was around 12) and now I'm seeing many of my friends dying of other health problems. (9 replies)
... Jack, I was originally diagnosed with FSH. I disagreed and went to MDA. I was rediagnosed with Limb Girdle (LGMD). How strange. The two dystrophies are totally different yet this indetermined diagnosis happened to both of us. I have a Dysferlin Protein deficiency. This causes BOTH Myioshi Myopathy and LGMD with different symptoms. Biopsies and DNA testing can help diagnose... (6 replies)
... Hi brandee, My name is Mark . I'm a 46 year old male with an undiagnosed muscular dystrophy. I was wondering if you could possibly mean Facioscapulohumeral muscular dystrophy or FSH. This Dystrophy affects the shoulders, upper body and face, neck and eyelids. I've mentioned in my other posts that I spent 5 years researching and collecting data on EVERY muscular dystrophy I... (7 replies)

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