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Muscular Dystrophy Board Index
Pages: 1 2 Showing 1 - 20 of 33 for miyoshi dystrophy. (0.002 seconds)


... How long have you had Miyoshi Dystrophy? ... (17 replies)
... I have had muscular dystrophy for over 7 years but it was confirmed 3 years ago after which seemed like millions of tests that I have "Miyoshi Dystrophy". ... (17 replies)
... Hi Mark, Thanks for your reply. I am 24 and was diagnosed 3 years ago. I have looked up the internet and got alot of information but this year has been been a good one to date. At the start of this year when I was in glasgow my knees went on me and a fell and broke a bone in my foot. Then 2 months ago the same thing happened and I broke my big toe. I usually have to... (17 replies)

... I'm sorry about your diagnosis. There is a lot of information on Dysferlin deficiency on the internet. If someone lacks this protein they will have Muscular Dystrophy because dysferlin helps your body rebuild muscle that is injured or lost to age. ... (17 replies)
... Hey Mike! I have Miyoshi Myopathy and I am a criminal defense attorney... ... (17 replies)
... Hey carebear. I have miyoshi also, also 24, and was diagnosed a couple years back also. Oh and I hate stairs too. How about stairs with no railing? ... (17 replies)
... I too have Miyoshi Myopathy. I am 40. Feel free to ask me anything. It is good to meet other needles in the haystack. ... (17 replies)
... Hey Claire! I am 28 years old and was diagnosed with miyoshi myopathy when I was 19. I experience the same symptoms as you explained. ... (17 replies)
... (17 replies)
... Hi Claire, Yes I fall, about 5 or 6 times a year. Unfortunately last night was one of them! But I didn't get hurt at all. My quadriceps are very weak. Stairs and chairs are my worst nightmare too. My symptoms are closer to LGMD2B then they are to Miyoshi. We think I am missing a different undiscovered protein and that the dysferlin deficiency is secondary. Let me try to... (17 replies)
... Hi, I made some RSS feeds from MD sites and put them on my desktop, so I have just spotted something about Miyoshi. http://www.institut-myologie.org/anglais/ewb_pages/n/news_3740.php Sorry if you already knew about it. Stipe (17 replies)
... I have miyoshi muscular dystrophy. I have done so much research. One thing I do questions if whether my variococele surgery had anything to do with muscular dystrophy. ... (1 replies)
... Miyoshi myopathy is a form of muscle degeneration or muscular dystrophy that begins in young adults, causing progressive muscle weakness. This usually begins in the distal, posterior leg muscles. ... (7 replies)
... I don't have Miyoshi but I DO have a dystrophy that involves a Dysferlin deficiency. ... (1 replies)
... Girdle Muscular Dystrophy type 2B. My symptoms point towards LGMD2B. ... (8 replies)
Miyoshi Myopathy
Aug 12, 2005
... Miyoshi Myopathy sufferers; please share with me - Did either of your parents have muscular dystrophy.??? I have Dysferlinopathy with Miyoshi-like symptoms, but dysferlin dystrophies are recessive inherited. My father had MD, my mother was "normal" so this is making my diagnosis difficult. I'm just trying to "poll" a few dysferlin patients to ask how they inherited thier... (23 replies)
... hey there, my name is chelsea. I dont know much about Miyoshi Myopathy but I have Muscular Dystrophy. I have problems getting up and walking a long time things like that. ... (7 replies)
... Girdle Muscular Dystrophy type 2B. ... (7 replies)
Miyoshi Myopathy
Jun 30, 2006
... ining in 2002 indicated a dysferlin deficiency, but a recent Western Blot Test showed Dysferlin to be about normal. My symptoms are almost completely opposite of Miyoshi Myopathy but with the same devistating results..... ... (23 replies)
Miyoshi Myopathy
Aug 12, 2005
... Otherwise it was good to see people continuing normal lives as usual. Despite certain inconveniences, I think miyoshi myopathy can me made a minor factor affecting us. ... (23 replies)




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