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Muscular Dystrophy Board Index
Pages: 1 Showing 1 - 20 of 22 for miyoshi myopathy symptoms. (0.003 seconds)

Miyoshi Myopathy
Apr 3, 2005
... My first doctor barely did any testing on me and said I had hereditary neuropathy. Symptoms of hereditary neuropathy are numbness and sharp pain which I did not have and this docotor said he was absolutely sure that I had this. ... (23 replies)
Miyoshi Myopathy
Sep 5, 2005
... Both my parents were fine. Neither of them showed symptoms of Miyoshi Myopathy. No one in my family has shown symptoms of Miyoshi. Both parents must be carrier of Miyoshi in order for any of their children to have it. ... (23 replies)
Miyoshi Myopathy
Jun 29, 2006
... My husband was diagnosed with Miyoshi Myopathy yesterday. He was originally diagnosed with LGMD 16 years ago at age 18. ... (23 replies)

... Miyoshi myopathy is a form of muscle degeneration or muscular dystrophy that begins in young adults, causing progressive muscle weakness. ... (7 replies)
Miyoshi Myopathy
Aug 12, 2005
... Miyoshi Myopathy sufferers; please share with me - Did either of your parents have muscular dystrophy.??? I have Dysferlinopathy with Miyoshi-like symptoms, but dysferlin dystrophies are recessive inherited. My father had MD, my mother was "normal" so this is making my diagnosis difficult. I'm just trying to "poll" a few dysferlin patients to ask how they inherited thier... (23 replies)
... I first had symptoms when I was pregnant with my first child. My legs would give way and I would fall but could get straight back up. My doctor put it down to me being pregnant. ... (7 replies)
... Hello Elly and Kayeloo I have LGMD 2B and was diagnosed with this in October 2006. We have different types of dysferlinopathy but I think we have a lot of things in common. Just now I am little confused about the differences between Miyoshi Myopathy and Limb-Girdle Muscular Dystrophy type 2B. I have been reading alot about both types, but it isn’t clear to me anyway. I... (7 replies)
Miyoshi Myopathy
Jun 30, 2006
... Dysferlin related dystrophy. Biopsy and staining in 2002 indicated a dysferlin deficiency, but a recent Western Blot Test showed Dysferlin to be about normal. My symptoms are almost completely opposite of Miyoshi Myopathy but with the same devistating results..... ... (23 replies)
... Hey Claire! I am 28 years old and was diagnosed with miyoshi myopathy when I was 19. I experience the same symptoms as you explained. ... (17 replies)
Miyoshi Myopathy
May 9, 2006
... Wow! As always, your symptoms sound a lot like mine. I definetly have known for 4 years that I have very low dysferlin levels....but not a complete absence of the protien. ... (23 replies)
... Girdle Muscular Dystrophy type 2B. My symptoms point towards LGMD2B. ... (8 replies)
Miyoshi Myopathy
Mar 26, 2005
... tire easily, having difficulty going up steps and on any kind of curb and getting up from any low chair or position. I'm 32 now, I think I first started having symptoms 7 years ago. ... (23 replies)
Miyoshi Myopathy
Aug 2, 2004
... years now, I have the same symptoms as you. ... (23 replies)
... I noticed that you are from Sweden. Very interesting because although my symptoms closely resemble LGMD2B, I have not yet received a positive diagnosis. ... (8 replies)
... My quadriceps are gone, almost zero strength. But I can stand on my toes. Much different than your symptoms I assume? ... (8 replies)
... I don't have any other problems with my feet and getting up from sitting position is getting more difficult (slightly). (7 replies)
... Hello Tanks for the information! I also think that lgmd 2B begins in the upper legs. Maybe I have misunderstood something about my own symptoms, I have to ask my doctor about it. Do you have any problem with your feet, except not being able to stand on tip toes? Do you have any problem getting up from sitting position? Take care! (7 replies)
... One of my first symptoms was difficulties running in gymnastics in school. Another symptom was that I couldn't stand on tip toes. My problems was then most located to my calves muscles. ... (8 replies)
Miyoshi Myopathy
Jun 30, 2006
... there. I't SO much easier once you know for sure and all your friends and family know too. There's no more hiding or missing events because you're scared of the symptoms showing. Friends and family that love him will be glad to help out and will understand. ... (23 replies)
Miyoshi Myopathy
May 7, 2006
... hi just read your post I have lgmd and your symptoms sound like mine kerbs stairs getting out of chairs etc do you have any weakness in your arms ? ... (23 replies)

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