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Muscular Dystrophy Board Index
Pages: 1 2 3 4 Showing 1 - 20 of 77 for miyoshi. (0.001 seconds)


Miyoshi Myopathy
Sep 5, 2005
... Both my parents were fine. Neither of them showed symptoms of Miyoshi Myopathy. No one in my family has shown symptoms of Miyoshi. Both parents must be carrier of Miyoshi in order for any of their children to have it. ... (23 replies)
Miyoshi Myopathy
Apr 3, 2005
... blood test on myself and my mother to look for increased levels of Creatine Kinase. I also heard that now they can just test blood and they can see if you have miyoshi myopathy without doing any further testing. I had a muscle biopsy and an emg test. ... (23 replies)
... Hey Mike! I have Miyoshi Myopathy and I am a criminal defense attorney... ... (17 replies)

... Hey carebear. I have miyoshi also, also 24, and was diagnosed a couple years back also. Oh and I hate stairs too. How about stairs with no railing? ... (17 replies)
... Hi Mark, Thanks for your reply. I am 24 and was diagnosed 3 years ago. I have looked up the internet and got alot of information but this year has been been a good one to date. At the start of this year when I was in glasgow my knees went on me and a fell and broke a bone in my foot. Then 2 months ago the same thing happened and I broke my big toe. I usually have to... (17 replies)
... How long have you had Miyoshi Dystrophy? ... (17 replies)
... Hi carebear, I'm sorry about your diagnosis. There is a lot of information on Dysferlin deficiency on the internet. If someone lacks this protein they will have Muscular Dystrophy because dysferlin helps your body rebuild muscle that is injured or lost to age. The type of MD is either Miyoshi Myopathy or Limb-Girdle Type 2B (LGMD2B). I am guessing you are late 20's or 30's?... (17 replies)
... I have miyoshi muscular dystrophy. I have done so much research. One thing I do questions if whether my variococele surgery had anything to do with muscular dystrophy. ... (1 replies)
... Not being able to stand on tip toes was also my first symptom. I can still walk long distances (even 25km a day, which I still do) but my calve muscles are shrinking and I suppose walking long distances is going to stop for me in the (not to far away) future. I am not sure about the differences but I did read that Miyoshi starts with the calve muscles and the Limb-girdle... (7 replies)
... I am very happy I found this website, because I have been looking allover for more information about Miyoshi Myopathy. ... (7 replies)
Miyoshi Myopathy
Jun 29, 2006
... My husband was diagnosed with Miyoshi Myopathy yesterday. He was originally diagnosed with LGMD 16 years ago at age 18. ... (23 replies)
Miyoshi Myopathy
Aug 12, 2005
... Miyoshi Myopathy sufferers; please share with me - Did either of your parents have muscular dystrophy.??? I have Dysferlinopathy with Miyoshi-like symptoms, but dysferlin dystrophies are recessive inherited. My father had MD, my mother was "normal" so this is making my diagnosis difficult. I'm just trying to "poll" a few dysferlin patients to ask how they inherited thier... (23 replies)
... I too have Miyoshi Myopathy. I am 40. Feel free to ask me anything. It is good to meet other needles in the haystack. ... (17 replies)
... Hey Claire! I am 28 years old and was diagnosed with miyoshi myopathy when I was 19. I experience the same symptoms as you explained. ... (17 replies)
... (17 replies)
... Hi Claire, Yes I fall, about 5 or 6 times a year. Unfortunately last night was one of them! But I didn't get hurt at all. My quadriceps are very weak. Stairs and chairs are my worst nightmare too. My symptoms are closer to LGMD2B then they are to Miyoshi. We think I am missing a different undiscovered protein and that the dysferlin deficiency is secondary. Let me try to... (17 replies)
... Hi, I made some RSS feeds from MD sites and put them on my desktop, so I have just spotted something about Miyoshi. http://www.institut-myologie.org/anglais/ewb_pages/n/news_3740.php Sorry if you already knew about it. Stipe (17 replies)
... Does anyone else know about it? I have had muscular dystrophy for over 7 years but it was confirmed 3 years ago after which seemed like millions of tests that I have "Miyoshi Dystrophy". I have been told that this form is very rare so I dont really know much about it about from that the dysferlin protein which muscles produce to help them work, my body is lacking in... (17 replies)
... I don't have Miyoshi but I DO have a dystrophy that involves a Dysferlin deficiency. ... (1 replies)
... hey there, my name is chelsea. I dont know much about Miyoshi Myopathy but I have Muscular Dystrophy. I have problems getting up and walking a long time things like that. ... (7 replies)




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