... And do the results take a long time to get.They started testing her in August for a liver disease and now they say it's a muscle disease.I hate all the waiting and the testing it's very stressful on her. ... (1 replies)
... Duchenne is the most common in boys and will have a high level of CPK but there are many NM disorders that have this as well including viruses that might attack muscles. ... (2 replies)
... Hi Mellissa, welcome to the board. Have any of the doctors you've seen tested your son for muscle function loss. ... (3 replies)
... Blood CK, also know as Creatine Kinase or CPK, also know as Creatine phosphokinase, is an enzyme that is found within muscle cells. When a muscle cell is ruptured or dies the CPK leaks into the system where it's carried away by the bloodstream. ... (1 replies)
... then you have early muscle damage and the enzyme is leaking into your blood stream. ... (1 replies)
... ow what theirs is and it need not define them. I'm sure it has been tough watching your dad, but the sooner you have facts and can help strengthen your shoulder muscle the better off you will be. ... (4 replies)
... ave the worst type, Duchenne, but a form of Limb Girdle. So don't feel alone or don't feel bad for feeling sorry for yourself, it's the beginning stages of this disease for you, give yourself time, it will eventually get easier to accept, or at least deal with, but keep in mind, it may take a while. ... (7 replies)
... Dave here,
I do not know where to begin, but only what is on my mind at this point of the "Game". Being a white male of 58 years old, I have had "degenerative disc disease" (DDD) for about 35 years now, Stage 3. NO surgery on my spine. I had a Muscle biopsy in my upper leg was negative in 10-2011. Over the 35 years I can not tell you how many EMG's, MRI's, Cat... (4 replies)
... I have seen an endocrinologist, rheumatologist, podiatrist and neurologist, and infectious disease specialist, in addition to my primary care physician. ... (2 replies)
... With DMD the body is already at a max type load of processing cell waste as the breakdown of muscle tissue is high. This is the main reason for the initial cpk tests as a marker for the disease. ... (2 replies)
