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Muscular Dystrophy Board Index
Pages: 1 Showing 1 - 20 of 29 for muscular dystrophy husband. (0.009 seconds)

... My husband has Muscular Dystrophy and I've helped out a few people on here and I thought I could help you too. ... (2 replies)
... My husband has myotonic muscular dystrophy he experiences the same things you are describing. His arms have gotten so weak he can't pick up anything heavy. ... (2 replies)
... I can't even begin to explain how much I understand. The only difference is, I AM the husband with LGMD. ... (7 replies)

... NO WAY! I'm in OK too!! I got my van at a place in Guthrie, Newby-Vance Mobility. From where I am, I get on I-40 West, hit I-35 North, take the first Guthrie exit, and it's on the right side of the road right after you exit. They sell vans with the ramps or lifts already installed. Are you on Voc-Rehab? My parents had to buy the van, but VR paid for the ramp and the lowered... (29 replies)
... Hi, My husband just turned 33 yesterday. He was diagnosed with LGMD when he was a teenager. We have been married 5 years and have a 2 year old son together. ... (29 replies)
... Hi Abigail, Here is some answers from my husband. 1. Mark said the enlarged heart sounds like Cardiomyiophty ( can't spell it, sorry ) which is quite usual in DMD boys and is usually treated with drugs. 2. The echo scan is just like having a scan when a woman is pregnant, Mark has one once a year and is ok. 3. Have u been to see a genetic counsellor? If not ask... (29 replies)
... TDCB, I don't wish to give you life-altering advice. You will need to do some serious soul-searching about having children. But let me offer this....... My father found out he had MD in 1961 just before I was conceived. I don't think my parents ever considered terminating or giving up on having kids.. And I'm glad they didn't go that route., (By the way they already had 2... (2 replies)
... Hi guys. I'm new to the board and just have a few questions. My 24 year old husband was recently tested for MMD type 2, and it came back positive, with a titer of 16,000. His dad and several of his aunts and uncles have it. ... (2 replies)
... :angel: (22 replies)
... Hi This Is My First Time On Here. I'm 38 Female With Lgmd.i Have A Husband Of 21yrs,3kids,22,18,11.i Dont Know Where To Start. While Here It Goes.i Was A Work Horse Before I Got Sick. ... (22 replies)
... Hi Belfiore83, thank you for your post and my apologies for only replying now. Yes, your view regarding genetic testing is how I understand it as well. Only time will tell, but for now I find myself to be in a different battle - my husband of 17 years is divorcing me and regardless to say, that opens up a whole new subject regarding my ability as parent ( son 13 years and... (22 replies)
... H Abigail, The Nectar Project has not proven to work, nobody should be asking you for money as it still at the trial stage. You however can get Royal Jelly capusles from some Herbalists, green tea also can be useful. If you would like anymore information, let me know and I will pass it on to my husband. How are you coping with your five year old? How's your partner coping... (29 replies)
... Hi, Mark is using a Nippy 1 at the moment ( B&D Electromedical ) and have just started to upgrade to a Nippy 3 which is mobile and it can be fitted on to a wheelchair to use out of the house. He uses a Sleep Gear with Nasal Pillows breathing connection. Mark does so well on a Nippy 1 but is still getting used to the Nippy 3, hope this has helped, any more questions don't... (29 replies)
... D and am 29 years old. I use a Bipap St ventilatory Support machine since I was 16. I use it 24 hours a day. I am looking for a different vent. How does your husband fair with his breathing support? ... (29 replies)
Random rambling
Nov 9, 2009
... One of the things I've had to come to terms with is that Muscular Dystrophy is a disease. It's no different from a person with Diabetes or Cancer. ... (9 replies)
Can anyone relate?
Aug 31, 2011
... I am having genetic testing for Myotonic Dystrophy Type 1. Actually I am expecting the results today or tomorrow and am very anxious. ... (5 replies)
... or my husband. I have come to accept that my muscular dystrophy has progressed to the point that I need help with any activity outside of my house. ... (12 replies)
... I think that when you tell people that you have a form of muscular dystrophy, they instantly expect to see you in a wheelchair. I have Myotonic Dystrophy and it has taken a long time to get my family to fully understand what that means. ... (20 replies)
... First of all, my heartfelt sympathy is extended to you even though I do not know you nor did I know your wife....I've not had a similar experience either, but I am intrigued since you mentioned your years of experience/training/caring for this disease. My husband was diagnosed just 5 months after we were married (we'll soon celebrate 27 years together) and still we know so... (1 replies)
... My husband says just say no if you don't feel up to something but it's so much more involved than that. ... (20 replies)

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