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Muscular Dystrophy Board Index
Pages: 1 2 Showing 1 - 20 of 42 for muscular dystrophy questions. (0.008 seconds)

... rd that this gene is hereditary what are the chances that my girlfriend in case we are to get married and have children that one of our children can be born with Muscular Dystrophy? ... (4 replies)
... That would be something she would need to talk about with a doctor. They can run tests and see what the chance would be. I have muscular dystrophy and none of my other sisters do. When my older sister got pregnant she did tests to see what the possibility of her child getting the disease would be. ... (4 replies)
... My Muscular Dystrophy is still of unknown etiology, but at one point it was believed I have Limb-Girdle. The current "theory" is that I have a Mitochondrial Myopathy AND Myasthenic Syndrome. Pain? You bet your sweet life I have it. My pain is mostly in my legs, probably because I was/continue to be somewhat stubborn about moving around when I should rest. I would be in... (4 replies)

... Hi Mark, Thanks for your reply. I am 24 and was diagnosed 3 years ago. I have looked up the internet and got alot of information but this year has been been a good one to date. At the start of this year when I was in glasgow my knees went on me and a fell and broke a bone in my foot. Then 2 months ago the same thing happened and I broke my big toe. I usually have to... (17 replies)
... I'm sorry about your diagnosis. There is a lot of information on Dysferlin deficiency on the internet. If someone lacks this protein they will have Muscular Dystrophy because dysferlin helps your body rebuild muscle that is injured or lost to age. ... (17 replies)
... I have been doing some research on muscular dystrophy and I would like to know some stuff that I have yet to find on the internet. ... (1 replies)
... If your son does get a high reading you should contact your local Muscular Dystrophy clinic. They will get you in to see a doctor who will help you. There are MDs that are Recessive Inheritance. ... (1 replies)
... Hi I see that no-one responded to your mail yet I have FHSMD (Fasiohumeralscapula muscular dystrophy) I knew two boys from the same family that had Duchenne MD Unfortunately they both passed away before their 18th birthday (2 replies)
... TDCB, I don't wish to give you life-altering advice. You will need to do some serious soul-searching about having children. But let me offer this....... My father found out he had MD in 1961 just before I was conceived. I don't think my parents ever considered terminating or giving up on having kids.. And I'm glad they didn't go that route., (By the way they already had 2... (2 replies)
... Hi guys. I'm new to the board and just have a few questions. My 24 year old husband was recently tested for MMD type 2, and it came back positive, with a titer of 16,000. His dad and several of his aunts and uncles have it. We've done all the research I can online, but we're still left with questions. Of course we can't get in to see the specialist until spring: :confused:.... (2 replies)
... facioscapulohumeral muscular dystrophy. Im 40 male with 2 children. ... (1 replies)
... important to know exactly what you are up against. There are new ways to have children free of disease and illnesses. Don't take any chances. Always ask lots of questions and get any information you can from your doctor. Don't just settle for one answer either, get facts in writing. ... (4 replies)
... I suppose we all different and I do not even ask questions anymore. Adjust and carry on. ... (2 replies)
... As apparant, I'm always happy to answer any questions or talk freely about my experience! ... (22 replies)
... Thank you Mark, I will keep you posted, I'm going to Germany in Dec and get one more high resolution MRI, (for some reason the contrast and resolution of the images wit hthe equipment they use there is much better than here.) After I get the new image I will have a complete set of them and it will give a close look at the amount of muscle tissue loss, since the last one.... (6 replies)
... Thankyou for answering my questions it's helped alot. ... (29 replies)
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... ses a Sleep Gear with Nasal Pillows breathing connection. Mark does so well on a Nippy 1 but is still getting used to the Nippy 3, hope this has helped, any more questions don't hesitate to contact me again. ... (29 replies)
... Thank you for reading, feel free to ask any questions i am more than happy to elaborate or discuss anything. ... (2 replies)
... I was diagnosed in 2011 with type 2 myotonic muscular dystrophy, and I am still having trouble dealing with the whole thing,I was very active, spent 21 yrs in the military and now I hurt constantly. ... (3 replies)

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