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Muscular Dystrophy Board Index
Pages: 1 Showing 1 - 20 of 24 for muscular dystrophy story. (0.010 seconds)


... Girdle Muscular Dystrophy. I have collected data for many years on every known type of MD. I have information on about 70 different muscle diseases. ... (2 replies)
... I'm no doctor, but I DO have muscular dystrophy. ... (6 replies)
... But after reading online I reckon that what I have is close to emery dreifuss muscular dystrophy. Does anyone here have that? ... (1 replies)

... y password and its taken me till now to request a new password..Anyhow not sure if this will work or get to you but i will give it a go.i have scapulao peroneal muscular dystrophy since i was about 10 years old. i was diagnosed with it at hamilton mc master hospital . ... (5 replies)
... I have been searching for a diagnosis and help for about a year now. I'm hoping one of you has a story similar to mine or information that could be of help. ... (2 replies)
... I was diagnosed with a form of Muscular Dystrophy in my mid to late 30's. ... (5 replies)
... disease. I just need a starting point it has to be a muscular problem all possible problems have been addressed my drs have jointly came to that conclusion however I cant seem to get a sence of diredtion from them. ... (6 replies)
... Hey Edward. I am Mathew with lgmd. I am not a doctor, but the first thing i would check is the level of cpk (creatine). Another thing that comes to mind is Acromegaly. Check the levels of your growth hormone. Maybe you have to much of a good thing. search on google for the symptoms. Good luck. (2 replies)
... Thank you Mark, I will keep you posted, I'm going to Germany in Dec and get one more high resolution MRI, (for some reason the contrast and resolution of the images wit hthe equipment they use there is much better than here.) After I get the new image I will have a complete set of them and it will give a close look at the amount of muscle tissue loss, since the last one.... (6 replies)
... Hey eyerot, Yes, the story, released Nov 15th, tells how dogs with a Duchenne-like MD were able to walk again after being injected with 50 million stem cells that produce a semi-funtional dystrophin protein. It's not quite perfect but a quantum leap in progress with very encouraging results. Can't post websites but if you do a few web searches and you'll find the... (2 replies)
... Hi, Mark is using a Nippy 1 at the moment ( B&D Electromedical ) and have just started to upgrade to a Nippy 3 which is mobile and it can be fitted on to a wheelchair to use out of the house. He uses a Sleep Gear with Nasal Pillows breathing connection. Mark does so well on a Nippy 1 but is still getting used to the Nippy 3, hope this has helped, any more questions don't... (29 replies)
... Dear Melissa, Hello my name is Alicia. I have Congenital MD and am 29 years old. I use a Bipap St ventilatory Support machine since I was 16. I use it 24 hours a day. I am looking for a different vent. How does your husband fair with his breathing support? Thanks for sharing your story. (29 replies)
... Thank you for posting! I'm sort of having the same memory lapse you mentioned.....Someone will be talking to me about some story in the news, or giving me instructions at work, and I'm not retaining what they're saying, even in the moment they are speaking. ... (5 replies)
Can anyone relate?
Aug 31, 2011
... I am having genetic testing for Myotonic Dystrophy Type 1. Actually I am expecting the results today or tomorrow and am very anxious. ... (5 replies)
... ave written a summery for anyone who just wants a general idea of my problem, but i have written in detail my situation for anyone who feels they wish to read my story further. ... (2 replies)
Is MD painful?
Mar 24, 2010
... to get more information, learn and relate to some other people who are having to deal with the same thing me and my family have to deal with. Im 23 years old and Muscular Dystrophy runs in my family. ... (16 replies)
Diagnosis
May 12, 2008
... Girdle Muscular Dystrophy. ... (15 replies)
... Girdle muscular dystrophy. I won't bore you with a 20 minute post, but if you check some of my previous posts you'll see my story. ... (7 replies)
Cpk 7335 tooo high
Mar 25, 2009
... girdle type Muscular Dystrophy. ... (3 replies)
... I try to never be cynical. But I would be very cautious in this case. If it were true that this clinic in China could cure Muscular Dystrophy, then it would be splashed all over the MDA USA website and also it would be all over the World News. ... (3 replies)


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