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Muscular Dystrophy Board Index
Pages: 1Showing 1 - 13 of 13 for myotonia muscular. (0.003 seconds)


... I found out that my mother has myotonia in one hand, so whatever it is, it's hereditary so I want the genetic testing done. I don't even care what it costs. I'll find the money to pay for it. ... (20 replies)
... I'm sorry about your diagnosis, especially at your age. I was 39 when my Muscular Dystrophy symptoms really became a problem. Did you go to an "actual" MDA Clinic in your area? ... (3 replies)
... Hello, I am a 35 yrs old female who recently was diagnosed at having Myotonia and myopathy. I was wondering if anyone knew the difference between myotonia vs myotonic muscular dystrophy? ... (2 replies)

... It doesn't really matter because the myotonia factor is basically the same and is treated xilletinewith the same medications. I started taking Tonocard, which is no longer on the market. ... (3 replies)
... I am 17 yrs. old and was diagnosed with myotonia about three years ago and i am very active in sports and it's very difficult to play them with myotonia. ... (3 replies)
... From your symptoms sounds like you should be posting in a Myotonic Muscular Dystrophy forum. ... (20 replies)
... Hi, I'm a 56 year old with Myotonic Muscular Dystrophy. My fathrer had it and I inherited it from him. I was diagnosed with it in 1992 and finally had to stop working in 1996. ... (2 replies)
... My husband has myotonic muscular dystrophy he experiences the same things you are describing. His arms have gotten so weak he can't pick up anything heavy. ... (2 replies)
... Thanks for the information. I am 43, have a 4 year old and deal with Myatonia issues every day. I too had my cataracts removed at 40. I have leg/foot muscle issues and stumble quite a bit. I have not heard about the sleep apnea issues - thanks for the heads up. I have been having stomach issues. At first, I thought it was food poisoning but now wonder if it is related to... (20 replies)
... I have adult onset myotonic dystrophy . It was confirmed by a genetic test. The best doctors to see are at MDA clinics. Myotonic dystrophy is a fairly new discovery so most general doctors are unaware of it. Neurosurgeons cover it briefly in school. The neurosurgeon I saw used a EMG test to find it. He said he had never treated it. He sent me to the neurology/muscular... (20 replies)
What do you think?
Sep 26, 2011
... New here. Saw a neuro on Friday for what has been progressive muscle loss all over my body that seemed to start with my face. Said it probably wasn't ALS or a muscular dystrophy, did a thorough neurological exam, have no reflex issues, but did no extra tests. I'm thinking of going back and asking for an EMG. ... (0 replies)
... I have a mild percussion myotonia and muscle weakness. Do they suspect that in you? ... (20 replies)
... I was given a genetic blood test. It was to find out what kind of myotonia I had, though. ... (5 replies)




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