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Muscular Dystrophy Board Index
Pages: 1 2 Showing 1 - 20 of 37 for myotonic md. (0.002 seconds)

... My mom has myotonic MD type 2, and she has 4 kids. ... (0 replies)
... l different yet the same. If you haven't already read the previous threads I know there are some here that have or are in the process of being diagnosed with the myotonic MD. If you want to ask them questions just hop on that thread with your question and they will read it as they check in and will send you a reply. ... (19 replies)
... You didn't mention which MD you have. I have Myotonic MD and outside of cateracts starting to show up, nothing much else. I'm 57 and really didn't start showing signs untill I was 46. ... (3 replies)

... I have Myotonic Dystrophy. It doesn't look all that bad from the different sites I've been to. I do know that my case was extreme before I got all my Vit and herbs going. ... (4 replies)
... Sorry it's taken so long to reply. I don't have Myotonic MD so I didn't want to be the first to respond. ... (1 replies)
... Hi dawnuk, I mentioned in my earlier posts that I spent several weeks building an Excel spreadsheet. My data included 66 types of MD and all the characteristics & symptoms I could gather. I made this hoping to help diagnose my own MD...we still don't know. Sorry there's no way to share my spreadsheet but I did consult it and found a few MD types that can affect the face and... (6 replies)
... The best advice I can give you is to contact your local MD Clinic if you've not done so yet. They are experts and can offer compassionate, helpful advice. Also, they can provide you with testing, equipment, etc. ... (5 replies)
... My father found out he had MD in 1961 just before I was conceived. I don't think my parents ever considered terminating or giving up on having kids.. And I'm glad they didn't go that route. ... (2 replies)
... my legs and arms are weak, and I experience alot of pain especially in my legs....My neuro says it is a type of myopathy and that can mean muscular dystrophy. MD runs in my family, my uncle has it. He has been told a form of charcott marie tooth by his years of symptoms. ... (1 replies)
... umatologist and several months later had the diagnosis. At the same time my brother was also going through the same thing and he was diagnosed as well. We have MD 2. My father had it but it had not been identified at that time. ... (2 replies)
... Hi Monnie -- I thought I'd chime in here to let you know that you aren't alone in all of this. I have a very similar story to Mark -- not exactly -- but similar. I was diagnosed with a form of Muscular Dystrophy in my mid to late 30's. At the time of the diagnosis, it was almost liberating to me because I had been a weakling all my life and had endured a lot of... (5 replies)
Marinol and MMD
Jul 29, 2007
... I am new to this board. I was diagnosed with Myotonic MD almost 2 years ago. I was having symptoms for a few years before that. The doctors could not understand what was wrong with me. ... (0 replies)
... That is sad. When your young any little thing can be very embarassing. I'm 22 with Myotonic MD. It's a hard thing to have. You may have read the post I made on this page. The meds didn't help me, I became very very sick and became worst really quickly. ... (1 replies)
... I am wondering what the first symptoms were for those with myotonic MD, any help would be appreciated. ... (2 replies)
... Hi, I have a form of muscular dystrophy called myotonic dystrophy. Although I do not have the problem with muscles not being able to relax, that is one of the symptoms of the disease. ... (1 replies)
... ago I had a neurologist ask me where my family was from, but he didn't say why. I figured it had something to do with my last name, so I went home and researched MD and found that MMD2 is common amongst people of German and Finland background. ... (19 replies)
... Hi, I have myotonic dystrophy 2, what is the differerance between Limb Girdle and other muscular dystrophys. ... (1 replies)
... Hi, I have myotonic dystrophy 2 and I live in Silver Spring. I have been seeing a rhumatologist but wonder how much he really knows about the disease. ... (5 replies)
... Hi, I have myotonic dystrophy 2 and I live in Silver Spring. I have been seeing a rhumatologist but wonder how much he really knows about the disease. ... (5 replies)
... Hi There I'm a 26yo female. My father has muscular dystrophy, either Myotonic or Distal (I think). We can't really work out the strain because its a unique case. He is 57 and permanently in a motorised wheelchair, he hardly leaves the house but we have a van with a wheelchair lift, the toilet looks like its off Inspector Gadget etc. So his legs have been hit the worse, arms to... (1 replies)

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