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Muscular Dystrophy Board Index
Pages: 1 2 Showing 1 - 20 of 40 for myotonic muscular dystrophy. (0.004 seconds)


... CLA. Even though Addie was responsive when taken from our home, her condition deteriorated through the night, as she was repeatedly given strong drugs that cause myotonic paralysis of her vascular system. ... (1 replies)
... Hi, I'm a 56 year old with Myotonic Muscular Dystrophy. My fathrer had it and I inherited it from him. I was diagnosed with it in 1992 and finally had to stop working in 1996. ... (2 replies)
... My husband has myotonic muscular dystrophy he experiences the same things you are describing. His arms have gotten so weak he can't pick up anything heavy. ... (2 replies)

... Hello, I am a 35 yrs old female who recently was diagnosed at having Myotonia and myopathy. I was wondering if anyone knew the difference between myotonia vs myotonic muscular dystrophy? ... (2 replies)
... I was diagnosed with fibromyalgia in '96. There was a test done recently that found 2 out of 63 people that were previously diagnosed with fms actually had Myotonic Dystrophy type 2. Since I had an Aunt and Uncle on fathers side that were in wheel chairs by early 20's from muscular dystrophy, this article caught my eye. ... (2 replies)
Myotonic dystrophy
Mar 26, 2007
... Hi goldeneyes. Sorry to hear you were diagnosed but am glad its just a minor form. My daughterinlaws hands, jaw, tognue, arms are effected now and she sleeps alot is always quite tired. For the most part she is able to meet the babies needs but its a worry at times as when she sleeps sometimes it is so deep she doesn't always hear him wake up and alot of times she seems to... (7 replies)
Myotonic dystrophy
Mar 16, 2007
... I was diagnosed with Myotonic Muscular Dystrophy (MMD) this past summer. I have a very minor form of it. It basically only affects my hands and my jaw (and heart yikes). Though I am affected only a little, some people are affected much more by MMD. Is your daughter in law physically capable of meeting her child's needs? (7 replies)
... pam31, I've collected data on every known type of muscular dystrophy; 70 types to date. I don't have a whole lot on this one but here's what I have: MD Type: Myotonic DM2 Also called: DM2 Inheritance: Dominant Gene mutation: Zinc Finger Protien Gene Location: 19q21 Avg Age at Onset: 8-60 (2 replies)
Can anyone relate?
Aug 31, 2011
... I am having genetic testing for Myotonic Dystrophy Type 1. Actually I am expecting the results today or tomorrow and am very anxious. ... (5 replies)
... Girdle muscular dystrophy because my legs and trunk are very weak. From the chest up, I'm not too bad. ... (6 replies)
... I was diagnosed in 2011 with type 2 myotonic muscular dystrophy, and I am still having trouble dealing with the whole thing,I was very active, spent 21 yrs in the military and now I hurt constantly. ... (3 replies)
... and still we know so little about myotonic dystrophy....how did you learn so much? ... (1 replies)
... Instead of saying "my grandson has muscular dystrophy" try saying "my grandson has been diagnosed with muscular dystrophy". That has worked better for me. That way you are simply saying what the diagnosis was and not technically speaking md over his life. ... (5 replies)
... They said it was due to my heart, but I think its due to Myotonic Dystrophy. ... (20 replies)
... I am 28 years old and was diagnosed with myotonic dystrophy at the MDA clinic. ... (3 replies)
... I was diagnosed with a form of Muscular Dystrophy in my mid to late 30's. ... (5 replies)
... I'm new to this site but read your message about the things you miss doing. I certainly understand. I have Myotonic Muscular Dystrophy. ... (29 replies)
... I was diagnosed in 2011 with type 2 myotonic muscular dystrophy, and I am still having trouble dealing with the whole thing,I was very active, spent 21 yrs in the military and now I hurt constantly. ... (3 replies)
... I recently had genetic testing done for Myotonic Muscular Dystrophy Type 1 and the results were negative. Seeing that I do have some sort of neuromuscular disorder, my neurologist says the next step is to have a muscle biopsy. ... (5 replies)
... From your symptoms sounds like you should be posting in a Myotonic Muscular Dystrophy forum. ... (20 replies)




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