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[QUOTE=tschreib1]I am a 36 yo female that was just diagnosed with Polymyositis last month. My doctor sent me to the hospital with a CPK level of 39,000. I spent a week in there on IV Fluids and high doses of Prednisone. I start Methotrexate this week and will be off the steroids in 5 weeks. My CPK level is now 94 and I feel good. I am hoping to never have a relapse again but of course I have no way of knowing if that will happen. I am wondering how other people have faired after being diagnosed and how long they went without a flare-up. Also if anyone knows of any side effects for the Methotrexate I would appreciate hearing that as well. I originally went to my doctor for muscle pain, I had felt like I was hit by a truck. I heard it was rare to have the pain...[/QUOTE]

I only took 10 mg of Methotrexate and I feel so weak in 3 days that my voice fades away when I talked. My Physician removed it from my treatment and replaced it with Imuran 150mg. In addition I was also taking Prednisone but 40 mg made my muscles weaker and brought my blood sugar up. My doctor reduced it to 20. It took 1 1/2 years to wean me off 20mg of Prednisone. I am down to 50 mg of Imuran, continue taking Fosomax and multi vitamin. I am closely monitored by my doctor followed by scheduled blood work. My CPK is 43 on my last check up. I also have a bone density test to check bone lost. I am 54 years old and I'm back to be able to do things like play 18 holes of golf walking. Good luck.





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