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Myositis Message Board


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I have the classic dermatomyositis rash. Had it for about 4 months now. All my bloodwork has come back normal. Have no muscle aches or pains at all. Had a full CT scan which showed a nodule on my adrenal gland. Going for an MRI of the area tomorrow. My doc tells me nodule on the adrenal gland is very common and will more than likely be nothing. I am not being treated at all for the rash which upsets me to some degree because I am concerned that this condition will be advancing quietly while nothing is done. Will be seeing a specialist on this in NYC next month. The rash hasn't gotten any better (with corticosteroid creams) but it hasn't gotten any worse. As I said, I feel fine but I feel that "cloud" hanging over my head. I could use any input anyone can provide. Thanks.





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