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Re: ? polymyositis
Aug 20, 2008
Hi, how did your testing end up? I was diagnosed 6 months ago with polymyositis. I had been suffering fatigue, aching legs and arms and throat cramps for over a year. I had been to a doctor at the time and was diagnosed with depression which of course was not the real problem. Eventually through some routine blood tests a year later i was sent to a neurologist who performed electronic muscle testing which showed i had the disease. I didn't have the muscle biopsy done as well as the doc said it doesn't always show up in that and is quite painful to have done. So after the initial shock of it all i was put on prendisalone, a high dose of 60 mgs which was horrible for a few months but my CPK count came down very quickly so the dose was dropped. Due to side effects from the steroid i was changed to Imuran, which i am still on. I have good days and bad days, get tired easily and if i do too much i will have the aches for a few days, however i feel much better than i did. Looking forward to the day i can go off all the chemicals though.
I hope all worked out well for you.
Take care.





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