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I have systemic lupus, and I am on plaquenil and my lupus got much better. Starting a few months ago, my skin and muscles were sooo tender to the touch. All over my torso area, front and back, and my upper legs and arms. I feel like something is really wrong! My skin feels like it is burning, but I am chilled to the bone and have to get under the covers to get warm.

My Rheumatologist mentioned polymyositis, but I had taken a predisone for a couple of days before that day, and was feeling better. My blood results were negative. The symptoms went away. This was a few months ago.

They have come back now with a vengance! I am not taking any prednisone. I am mostly good during the day, but at night I am awful and have to lay down. However, even during the day isn't great. My neck is so sore now just from sitting at the computer and typing that I feel like I need to lay down and prop my head up so my neck can rest! And like I said, I almost fall to the ground when somebody touches me because my muscles and skin is so sore. Does this sound like polymyositis to anyone???





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