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Myositis Message Board


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hi! I know it's a month since you posted this , but I just got onto this site. You live in the next town from me. You need to see a rheaumotologist if you already haven't. My cpk levels were high and my liver was off before I was diagnosed with myositis The Dr.'s didn't pick up on it till it was too late and I got a flare up that I ended up in the hospital for 2 weeks . My CPK levels went up to 7000. I was paralized, I couldn't walk, turn over, lift my arms, and had a hard time swallowing. If you do have this and you get diagnosed and treated right away.you have a good shot at not having permanent muscle damage. I was very lucky, although I was so sick I have gotten alot of my muscle strength back. It has taken 9 months and alot of medication. Get a muscle biopsy asap! I hope it's not but the sooner you find out the better! GOOD LUCK! TLOVE





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