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Re: Polymyositis
Aug 24, 2011
Hey just wanted to commend the fact that you have been battling this condition is amazing!! I've had this condition for three years and battle with my emotions constantly. I have more good days these days but i still have days when i am sore and fatigue. I've yet to hear i am remission. I am doing the antibiotic treatment hoping this is the answer to combat this disease.
Re: Polymyositis
Sep 23, 2011
[QUOTE=sharimagia;4829034]Hey just wanted to commend the fact that you have been battling this condition is amazing!! I've had this condition for three years and battle with my emotions constantly. I have more good days these days but i still have days when i am sore and fatigue. I've yet to hear i am remission. I am doing the antibiotic treatment hoping this is the answer to combat this disease.[/QUOTE]
Today I go to the doctor hope everything will check out, hoping my CPK will be normal.
Re: Polymyositis
Jul 13, 2012
[QUOTE=sharimagia;4829034]Hey just wanted to commend the fact that you have been battling this condition is amazing!! I've had this condition for three years and battle with my emotions constantly. I have more good days these days but i still have days when i am sore and fatigue. I've yet to hear i am remission. I am doing the antibiotic treatment hoping this is the answer to combat this disease.[/QUOTE]

Sharimagia,

I have read through all your posts and am very interested to hear how you're doing now. Are you still on antibiotic treatment?

My dad was diagnosed with PM about 5 years ago. He is 86 years old. The year before he was diagnosed, he was on a bowling team, golfed regularly, and was very, very active. Now he's in a wheelchair, and his dream is to be able to walk again.

He's tried methotrexate, IVIg, and currently has been tapered down to a low dose of prednisone. I think he also tried CellCept. I don't think he's tried imuran.

I'm really curious about whether the antibiotic therapy can help him. I'll tell him to ask his rheumatologist about it.

How are you doing? I sincerely hope your treatment is helping you. God bless you.

Peggy





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