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Myositis Board Index
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Pages: 1Showing 1 - 14 of 14 for emg experience. (0.010 seconds)

... Hi, I just had an EMG yesterday as part of a battery of tests for polymyositis. ... (4 replies)
... macaimless, Sorry for not responding sooner but I was on vacation. As I had said, ALL my labs were also negative. Except a slightly elevated RA. I too was very physical person, and had a very physical job, so I do totaly understand your frustration in that respect. I never had an MRI of my thighs or pelvis(I have a cardiac implant so No MRI's for me at this point) but... (4 replies)
... Thank you for your posts. Mom, what were your symptoms that led your docs to "believe" in you and continue with the testing? Mine are weakness and pain, mostly in my pelvic girdle area and a shuffling, waddling gait that gets progressivly worse with exercise. I am unable to walk normally for any distance and climbing or descending stairs or any kind of incline is very... (4 replies)

... mcaimless, I was diagnosed with myositis through muscle biopsy. THAT is the DEFINITIVE Diagnosis. All other testing was negative with ME. All labs, EMG/NCS negative. It took a major medical facility who believed in me to not stop at that testing and go further with a muscle biopsy. If this Doctor your seeing isnt "right" for you, dont stop there. Everyone diserves the... (4 replies)
... I am diagnosed with myositis and polyneuropathy and have nerve damage in all of my extemities. Mine is very painfull with my left upper thigh having sharp burning pain that makes me leap out of bed at night, not to mention sometimes can not move my leg to get out of bed sometimes because movement caused severe pain. They give me neurontin, and methadone , it helps some but I... (4 replies)
... unless he might be looking for something else. My doctor was also concerned about and wanted to rule out MS, hence an EMG and an MRI. Sometimes a doc learns MORE by ruling stuff OUT than by ruling stuff in. Personally, an EMG is not a particularly favorite test of mine. ... (11 replies)
... What are people's experience with recovery? ... (6 replies)
... of tests were run. First came the botched muscle biopsy, that I awoke to while being sutured back up. Then came the unforgettable EMG. That was the most horrific experience I have ever gone through. The Dr's were unable to complete it due to the number of spasms I was having. I did have a battery of blood tests as well. ... (9 replies)
Negative Testing
Nov 27, 2015
... is it possible to still have myosotis with a negative EMG and multiple negative CPks? ... (0 replies)
... Im not sure if people read all threads as Ive already explained my situation on another. I thought in case you hadn't I would outline my experience with polymyositis as it might be useful for you to read. I was diagnosed in 2000 and at that time was fairly unwell and debilitated. ... (11 replies)
... Hi All, I actually came to this site because of a "Lisfranc" foot injury. I decided to see if there was a Dermato board and I was surprised to read how many people are battling it. I wanted to answer everyones questions because I have been through it all with Dermato. So I figured I would just share with all of you my experience. I was 23 when I was diagnosed with Juv... (0 replies)
? polymyositis
May 11, 2008
... wondering if anyone had similar experience or can offer advise. For the past year have been feeling extreme weakening. Went to Rheumatologist last week and my enzymes came back at 3000. ... (7 replies)
... Your experience with how your symptoms progressed are like DITTO to what I feel! ... (8 replies)
Myositis and Pain
Feb 27, 2008
... I was diagnosed with myositis last year through muscle biopsy. All other tests were negative. My CK was never elevated. EMG were normal ect..I havent had my CK levels checked in approx. a year at this point. ... (0 replies)

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