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... Sorry to hear about your child. I had EMG testing which also showed the muscles were deteriorating, confirming the diagnosis of dermatomyositis. I did not have muscle testing. ... (6 replies)
... Hey, Thank you. I was pretty sure that people were being diagnosed without muscle biopsy. Her CK was 16000 and so on. After having the EMG I would of thought they would have started treatment. Because it is so rear and we live in small country, no one really new what to do. ... (6 replies)
... Exteme high ck over the 18 months, rash, muscle pain etc. Had EMG that show no doubt that the muscle are dying. ... (6 replies)

... unless he might be looking for something else. My doctor was also concerned about and wanted to rule out MS, hence an EMG and an MRI. Sometimes a doc learns MORE by ruling stuff OUT than by ruling stuff in. Personally, an EMG is not a particularly favorite test of mine. ... (11 replies)
... The pain will subside as your muscles start to heal. I have been told the course of treatment is prednisone to get things "under control" and then adding Imuran with an abnormal CPK and Methotrexate with a "normal" CPK as well as Plaquenil for the skin. ... (16 replies)
... the itching and swelling, prednisone injections, prednisone pills, triamcinalone cream, and finally collapsing on my bed for three days, I ended up at the U of M ER. ... (16 replies)
... in E and D and Multi vitamin. I started my treatment in of April and every week I was getting better and my CPK was down to 800 in June. This time he changed the Prednisone to 15mg and continued the rest of my meds. ... (11 replies)
... ause it was the first week of symptoms, the second was negative because I had a resident who only did 2 needle sticks and myopathy can be scattered and the third EMG was positive because they were looking for it and did it right. EMG's are only as good as the one performing it. ... (16 replies)
Myositis and Pain
Feb 27, 2008
... I was diagnosed with myositis last year through muscle biopsy. All other tests were negative. My CK was never elevated. EMG were normal ect..I havent had my CK levels checked in approx. a year at this point. ... (0 replies)
... My physician changed my medication to Imuran 150 mg and told me to take 40mg of Prednisone in the morning. He increased my glucophage to 850mg2x to control by diabetes. ... (3 replies)
... I was put on Prednisone for a time, and unfortuantly it made matters worse for me. I felt weaker, so was weend off them and just have been dealing with it. ... (6 replies)
... I was started on 60mg of Predinose once a day. In 4 days of Prednisone my CK levels dropped to around 2500. ... (1 replies)
... of time, I have done that. On several occasions due to stress, death of 4 family members in 4 years, my CPK has gone up and my rheumatologist has put me back on prednisone or methotrexate or both. I have never heard of a cure. What I understand is what damage that has been done to muscle is permanent. ... (5 replies)
Looking
Jul 29, 2010
... d reading your post. I was diag in 1995 with polymyositis, I had an EMG, blood work and biopsy of muscles in arm and leg. I was in my 40's then. I ended up on prednisone for 12 years. I found it really hard to function otherwise. I first took Immuran, side effect for me, cancer and had a hysterectomy because of that drug. ... (4 replies)
... I was originally dx'd with Dermatomyositis in 1989. I had just turned 13 which was a very important time in my life. I was born and raised on a horse farm here in Texas. Every minute of my day was spent on or with my horses. My symptom's started with an upper respiratory condition and fatigue. My local Dr. had me on antibiotics for approx. 4 months. My condition progressed to... (9 replies)
... I am also a mother of 4 and have Myositis. You need to get a muscle biopsy to confirm it. If you do have PM you usually get treated with prednisone at first. It all depends on what you have and how your body is responding to determine what meds you'll need. ... (11 replies)
... Here's the issue. We have also been tenatively diagnosed with dermatomyositis. Her CPK was 2500 initially, after a week of 30 mg of prednisone it went to 895, and after a month, and dropping the pred to 10 mg, went to 189. ... (1 replies)
... I was placed on 120mg per day of prednisone and don't remember how much Methotrexate, and an arsenol of drugs... ... (0 replies)
... been out of work since June of last year and now filing for social security. NOT where I thought I'd be so suddenly, at 43! I didnt have any improvement being on prednisone either, not everyone responds to the steriod treatment. ... (8 replies)
... I have been diagnosed with polymiositis so far, it took 2 muscle biopsies and 3 emg's to get this far. i'm on prednisone and have had 2 ivig treatments. I'm going to Cleveland Clinic in Ohio to see to see another neuro top in the field i've been told. ... (15 replies)


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