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Myositis Board Index
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Pages: 1 Showing 1 - 20 of 26 for people with dermatomyositis. (0.026 seconds)

... I diagnosed with Dermatomyositis one years ago I develop weakness too in throat and muscule neck, shoulders,and hips. ... (7 replies)
... I've been told that people with DM can have normal CPK levels and the disease still be active... ... (18 replies)
Mar 15, 2007
... this is my first time post. i am not a good speller or good with the computer but i do have dermatomyositis and a need to explain my self with people who understand what i am going through. it is hard for my family and evein the doctors to fully understand what we go through with dermatomyositis. ... (5 replies)

... To start with i'm unhappy about something else! ... (4 replies)
... I post in the Sjogren's board about my wife and our struggle lately. I figured that I would post here, too, to see what people have to say. ... (1 replies)
... My daughter was diagnosed with JD at the age of 6. We were absolutely devastated. After a horrible experience with one doctor, we found another doctor whom I credit with saving our daughter's life. ... (15 replies)
... Can you explain what type of rare infection you had and what treatment was given? It is believed by many that dermaomyositis is caused by a viral infection. (14 replies)
... I believe Ive read that some people dont develope muscle symptoms with dermatomyositis, and only have the skin symptoms. ... (14 replies)
... Not really because we noticed with all the positiveness it elemenates some negitive. ... (15 replies)
... Sorry to hear you are not getting better. This can definitely be a slow process. I was diagnosed with dermatomyositis last August and could not climb stairs without a rail until at least December. ... (2 replies)
... That is really strange for a disease family (PM and DM combined) that supposedly only stikes 1 in 50,000 people. My cousin has PM, and one of my brother's old girlfriends (no blood relation) also has PM. (18 replies)
... you don't want a disease like PM or DM but you know something is wrong. The neuro I saw that diagnosed me said that 1 out of 3 people with DM will always have normal bloodwork. I imagine it is probably the same for PM. And everything I have read about DM says there usually isn't much pain. NOT TRUE! ... (5 replies)
... Well, I finally did get a definite diagnosis of DM. I went to a Muscular Dystrophy clinic and the neurologist there told me that 1 out of 3 people with DM will have normal bloodwork throughout the disease. I did have a muscle biopsy which also clinched the diagnosis. ... (5 replies)
... Hi, I had dermatomyositis at age 18 which isn't considered the adult form which occurs in 40 to 50 year olds more often. Actually I had no idea what I had was dermatomyositis until today I heard on the radio about a singer who had it, and I was like "That is what I had. ... (15 replies)
... tis. The reason I come to this board, is because here in Belgium, such a very small country in Europe, it's an extremely rare condition, and my search for others with this illness has been in vain. I need to talk to others and share my experiences, feelings, fears, hopes, perhaps get answers to my questions... ... (9 replies)
... I actually came to this site because of a "Lisfranc" foot injury. I decided to see if there was a Dermato board and I was surprised to read how many people are battling it. I wanted to answer everyones questions because I have been through it all with Dermato. ... (0 replies)
... r his health care and medical expenses at the end of this month and I thought this seemed like a great idea. I have some actor friends who were going to help out with this and all seemed to be going along smoothly until a few days ago. ... (0 replies)
... Hi My Daughter Was Diagnosed With Jdm Last November And I Am So Glad To Hear Other People Are And Have Gone Through The Same As Us As We Really Have Felt So Alone In Our Quest For Information And Help For Our 7 Year Old Daughter. ... (15 replies)
... I'm new here, so I hope I'm not going in to too much detail. I am hoping someone with experience with my symptoms may be able to offer some insight. ... (3 replies)
... on getting my medical records i know when i was diagnosed they told me it was very rare i was under a case study and all... i was so surprised to find this site with all these people that have the same problem... Thanks so much for your help.. ... (15 replies)

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