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Myositis Board Index
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Pages: 1 2 Showing 1 - 20 of 34 for people with polymyositis. (0.006 seconds)

... they couldn't tell if I had plain old Polymyositis, Inclusion Body Myositis or what. My neurologist explained that Prednisone can wreak havoc with the biopsy results. I don't know what to tell you about why it took so long for your results. ... (15 replies)
... Hello, I'm new here to this particular site, so I'm not quite familiar with it. I am however, quite familiar with Polymysitis. ... (15 replies)
... I only took 10 mg of Methotrexate and I feel so weak in 3 days that my voice fades away when I talked. My Physician removed it from my treatment and replaced it with Imuran 150mg. In addition I was also taking Prednisone but 40 mg made my muscles weaker and brought my blood sugar up. My doctor reduced it to 20. ... (15 replies)

... I am a 36 yo female that was just diagnosed with Polymyositis last month. My doctor sent me to the hospital with a CPK level of 39,000. I spent a week in there on IV Fluids and high doses of Prednisone. I start Methotrexate this week and will be off the steroids in 5 weeks. ... (15 replies)
... and I was diagnosed with Polymyositis back in 2004. In 2002 I had a blood test which showed I had slightly high Cholesterol and was prescribed Statins. ... (11 replies)
... e attitude of "Expect the worst, but hope for the best." Even if you DO have Polymysitis, there ARE many treatment options that could get you back on your feet with the right doctor and med combo. They know more about this disease than they did even just six years ago. ... (11 replies)
... Im not sure if people read all threads as Ive already explained my situation on another. I thought in case you hadn't I would outline my experience with polymyositis as it might be useful for you to read. I was diagnosed in 2000 and at that time was fairly unwell and debilitated. ... (11 replies)
... day. The polymyositis has to this point affected my legs, arms, neck, trunk area, diaphragm and heart palpitations, and my swallowing and vocal cords are just now being affected. ... (1 replies)
... Yes Patti is my name. I have had a very stressful life. I believe that in time it effected my auto immune system, polymyositis is an auto immune condition. People with PM can do much worse than I am, I still have the use of my legs and when I belonged to a support group on the internet, I learned just how lucky I am. ... (23 replies)
Nov 10, 2011
... d. I also become depressed and find that keeping buisy helps and staying in bed makes my depression worse. And I'm afraid I'll get bed ridden, atleast I'm mobile with my own strength without canes or wheelchairs. ... (4 replies)
... and that can happen next week or in 20 years. I avoid people with coughs and keep hand sanitizer in my car. Other than that, I try not to think about it too much. ... (20 replies)
... so it is very rare to die from Polymyositis itself. However, the battery of medications that you sometimes have to take is another story. Even just with prednisone, you must be very careful about infections as it works by stomping down your immune system. ... (11 replies)
Jul 24, 2011
... Would like to chat with people who have polymyositis and share how we can help each other cope with this illness. I think talking about what we share can help because we all don't share the same pain that i have read in some of the threads. ... (16 replies)
... I am 56 and have had Polymyositis since 1996. It sounds like you have the answer, that is...not to worry about the future and what might be...but stay in the moment and take each day at a time. ... (13 replies)
... up of the myositis but the CK levels are still down. This illness is so hard to follow. That's the worst part with auto immune diseases. I'm seeing my rheumatologist next Wed. ... (5 replies)
Aug 12, 2012
... I am glad I found this forum. I was diagnosed with pm back in May of this year and I gave to say its been the hardest diagnosis I have ever had. I was in the hospital for8 days. ... (16 replies)
... I agree with you, Patti that we are very lucky. I, too belong to a support group and i read how this affects people a lot worse. ... (23 replies)
... so bad that I couldn't leave my house for about 2 years. I couldn't sit on normal furniture. Every little thing was such a struggle. I improved so much to where people can't tell that anything is wrong with me now. I still have a lot of pain from my illnesses, but I am able to function pretty well now. ... (4 replies)
... I was diagnosed in 2008 with cpk at 6900. I haven't had any of those problems then and now. ... (1 replies)
... After purchasing the generic Cellcept, it freightened me reading the side effects of the drug. I guess it can have quite an effect of the GI and cause people to get sick. ... (4 replies)

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