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Myositis Board Index
Board Index > Myositis | 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
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... come back and the pain to go away. I went back to work only 1 week after the outer swelling was gone, but my eye motility was still painful and limited, that's what nobody sees. We can look completely fine on the outside but looking in any direction causes insane amounts of pain. ... (9 replies)
... Yeah! I agree with ToniT...they do treat myositis with either IVIg or else steroids. The ironic thing with steroids as treatment for myositis is that steroids can cause myositis themselves and lead to muscle damage! They have to be used carefully. ... (12 replies)
... I was just diagnosed 6/26/11, similar experience that you have, I have an appointment to see a rheumotologist on Tuesday to start immune suppressant. Very interested in hearing how you are doing. Thanks. (9 replies)

... (9 replies)
... Was diagnosed in Feb 2010. Don't feel it is much of a diagnosis as doctors have no idea what is causing it only that it responds to steroid treatment. ... (9 replies)
... Basically, sometimes myositis is caused by an infection, such as Lyme disease. ... (18 replies)
Orbital Myositis
Aug 9, 2007
... I have been diagnosed with an Orbital Pseudotumor, and now also Myotosis. ... (4 replies)
... I was diagnosed in May with Polymyositis after my CPK came back at 40,000. ... (17 replies)
... My daughter was diagnosed in 2009 (age 11) and has at least one major flare up a year. Up until this year she was treated with steroids. Gained a tremendous amount of weight and all the sef-esteem issues associated with it. It has taken us 4 years to find a regiment of steroidal drops which keep the eyes open and IBuprofen 600 for the pain. Can't seem to find an expert. (13 replies)
... Myositis are considered inflammatory myopathies. Inflammatory myopathies are diseases of the muscle where there is swelling and loss of muscle. ... (6 replies)
... (13 replies)
... I am so happy I could cry, I am new. Hi. I am amazed to find a message board that actually might have information about my diagnosis. I have just been diagnosed with Orbital Myositis. I am scared to death, my blood tests will not be back until Thursday regarding autoimmune dieases this could be associated with. ... (13 replies)
Myositis and Pain
Feb 27, 2008
... I was diagnosed with myositis last year through muscle biopsy. All other tests were negative. My CK was never elevated. EMG were normal ect..I havent had my CK levels checked in approx. ... (0 replies)
Dec 7, 2009
... of the legs are weak, what activities are affected, is it the same on both sides of the body, it will tell more. ... (4 replies)
... story is basically, I was diagnosed with polymyositis after bloodwork and a muscle biopsy. ... (3 replies)
... I went through the fear and denial, then acceptance. I have a 'condition' that is random, comes and goes whenever and that's just how it is. I found my biggest trigger, rubbing my eyes, and I don't do that at all any more. ... (13 replies)
... I had an upper chest rash which matched a photo I saw on a Myositis site therefore my dermatologist has refined my diagnosis to dermamyositis. ... (12 replies)
... They first thought I had polymyositis, but turned out it was not. They said that PM could be treated and even put into remission, but IBM is something no one knows anything about. Since no treatment has been effective, I have started water rehab, 1 hr 3 times a week for the last 2 weeks. ... (0 replies)
... ou are right in your assumption that I live in the States. Few of those I know brag of any positive experience with drs especially specialists. Actually my derma is cool, her husband is my allergist who is cool too. ... (12 replies)
... You should have an EKG and a baseline echocardiogram done to see if you have any heart beating problems. ... (12 replies)

Associated Tags: cellcept, orbital myostis, polymyositis, prednisolone, pregnancy

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