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Neuromuscular Diseases Message Board

Neuromuscular Diseases Board Index

What is going on?!
Jul 26, 2007
I usually post on the MS and Lupus boards, but I thought perhaps someone here could shed some light on my situation. I have been suffering from pain, stiffness, twiching, burning, muscle jerking, numbness all over (including face, arms, legs, torso, feet and hands), fatigue,and headaches for about 3 years. I have seen a neuro for about a year and half with no answers. My rheumy is pretty good. I have family history of Lupus and he has suggested that I have a "lupus-like" condition, but many of my symptoms are not consistent with Lupus.

Well, today started as usual...with pain and stiffness. My lower legs and feet were achey and stiff when I stepped out of bed but today my legs felt very weak and wobbly. I kept having to get back into bed. Getting into the shower, I almost fell. I went off to work where each step felt like a task. My lower legs tingled all day with occasional tightness for no reason. Around 2pm I suddenly felt extremely tired. So tired that I came home. After spending an hour and half in bed, I got up to see if my legs were back to "normal". Nope. I don't know what I am going to do. I have a rheumy appt next week. Since these symptoms are visible, I don't want to bother calling the neuro (she told me not to call unless they were). I'm just very sad right now. I feel like this is never going to end and noone will tell me what it is.


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