It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Message Board

Neuromuscular Diseases Board Index
Pages: 1 2 3 4 5 6 7 8 9 10 11 ... 13Showing 1 - 20 of 256 for chronic progressive external ophthalmoplegia. (0.004 seconds)

... This is my first post here and I would like to chat with people who have or know about Chronic Progressive External Ophthalmoplegia (CPEO) I am a 49 year old female who first started showing signs of hearing loss at the age of 42. because I had bactierial meningettis back in 1995 all dr. said the hearing loss was probably from that or the medication I was put on at the... (55 replies)
... Has anybody been diagnosed with CPEO? (Chronic Progressive External Ophthalmoplegia) I would like to discuss this disease with people who actually are diagnosed with it rather than the countless physicians I've been seeing. Thank you! (96 replies)
... Our rare disorder may not be so rare any more. This study is only a few patients with HIV from one clinic in Texas, USA. After 7.8 years on some antiretroviral drugs they're developing an acquried CPEO with mulitple mtDNA deletions. There are probably a lot more. What do you think? Clinical Infectious Disease. 2008 Sep 15;47(6):845-52. Blepharoptosis and external... (80 replies)

... t UCLA who did my frontalis sling said I would never look normal but that this would get me as close as I could be. I'm under the impression that since this is a progressive disease that I'll periodically have to go back in and have it adjusted. I'm just not sure when I should do that. ... (55 replies)
... the ophthalmoplegia symptoms have apparently improved in the last 12 months and I have more movement in my eye muscles. ... (80 replies)
... dating it. But it still seems the most positive! Most of the studies seem to look at doses of 150Mg or around that. Dunlop, in "Reversible ophthalmoplegia in CPEO" used doses of 300Mg, which seemed to work. ... (96 replies)
... ecialize in acupuncture to see if they would be able to treat this ...I was doing research online and noticed that some studies were done in China on people with ophthalmoplegia that had some favorable results. ... (96 replies)
... Ptosis is just the eyelids that drop, and with cpeo all the external eye muscles, also those that make it possible to look in different directions, work less and less. I have mostly ptosis, and some difficulty moving my eyes. ... (19 replies)
... also have chronic dry eye and now balance issue due to weakness of my feet. ... (55 replies)
... I am a 44 year old male from Ireland. My eye lids started drooping in 1992 and in 1996 I was checked out by an eye specialist in Dublin but at that time the muscle biopsy was inconclusive. After the symptoms worsened I went back for a second investigation and I was diagnosed with CPEO in 2005. My left eyelid is now closed all the time and my right eyelid is 50% closed. ... (0 replies)
... Hello! I wanted to ask if anyone else has had eyelid surgery to help correct ptosis? The most severe way in which I am affected by CPEO is in my left eye which has become progressively more and more droopy over the last 15 years. A year and a half ago, I had an eyelid-lift surgery. I'm not sure whether it was the frontalis-sling surgery I've heard about or not- the... (55 replies)
... Silv, how are you doing these days? (55 replies)
... Jayme, how is everything with your eyes and feet? (55 replies)
... Hi, I havent been on the site in ages, how are u keeping? hope u are well (55 replies)
... silv, feeling any better? I had my eyelids probed aug. 2012, helped a bit. Lower eyelids lifts scheduled next month. how have you been? i did move from MD to FL... (55 replies)
... OMG you poor thing! I can't even imagine that ! What can they do for you? (55 replies)
... I also have a Blepharitis... inflammation of the eyelids. My eyes hurt so bad I want to go pluck them out (55 replies)
... I've got hearing loss as well. A lot of neck and shoulder pain to. The list goes on. Just feel all around crappy. Don't know how to pull myself together. (55 replies)
... can't wait. My eyes are killing me. One gal is from Ontario and has hearing loss. (55 replies)
... so good to hear from you. Really is! (55 replies)

Associated Tags: cpeo, droopy eyes, irregular heartbeat, ptosis

Pages: 1 2 3 4 5 6 7 8 9 10 11 ... 13

All times are GMT -7. The time now is 08:05 AM.

2018 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!