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Neuromuscular Diseases Board Index
Pages: 1 2 3 4 5 6 7 8 9 10 11 ... 23Showing 1 - 20 of 466 for cpeo. (0.009 seconds)


... el concerned that any children I had would have would develop any of the numerous inherited conditions in my maternal family. We are to date unsure of where my CPEO has come from! I did however a little research and found out that CPEO is a recessive gene. ... (96 replies)
CPEO information
May 29, 2009
... Before going into what CPEO is I would encourage you to read the other posts on CPEO on healthboards. Just put CPEO into the search bar at healthboards and you'll get some of the closed postings... ... (20 replies)
... virtually no resources or information on Mito disorders. I was flying "blind". I was told it would only effect my eye and that there is a cardiac connection. CPEO patients can develop cardiac arithmias. Although rare it happens and maybe later I'd need a pacemaker. My eyes were status quo for many years. ... (19 replies)

... The most severe way in which I am affected by CPEO is in my left eye which has become progressively more and more droopy over the last 15 years. ... (55 replies)
... se movement of other eye muscles as well which happened slowly over many years. I have generalized fatigue as well. I am not sure if hearing loss is typical of cpeo but mitochondrial myopathies run across such a spectrum that its probably not completely unusual. Hope this helps. ... (26 replies)
... A singular deletion CPEO is consider sporadic, but some exceptions have been found. Dr. E. ... (80 replies)
... I have some other problems but probably like others I'm not sure if they are related to the CPEO or not. Only recently I discovered I had sleep apnea. ... (80 replies)
... I have been so encouraged by reading these CPEO threads as the specialist basically said that there was very little known about how to manage CPEO. ... (80 replies)
... ialist in Dublin but at that time the muscle biopsy was inconclusive. After the symptoms worsened I went back for a second investigation and I was diagnosed with CPEO in 2005. ... (0 replies)
Cpeo
Dec 29, 2011
... ialist in Dublin but at that time the muscle biopsy was inconclusive. After the symptoms worsened I went back for a second investigation and I was diagnosed with CPEO in 2005. ... (0 replies)
... cycling is none existant. Anybody else suffer from breathing trouble and had a diagnosis related to CPEO or mito disease? ... (55 replies)
... Have you been diagnosedd with CPEO long and have you had eye surgery, and if so what eye surgery did you have had. ... (19 replies)
... He actually recommended that those of us with symptoms of CPEO should also have our thyroids checked. Some thyroid problems will either mimic CPEO symptoms and or will axacerbate our symptoms. I haven't read or heard that anywhere. ... (77 replies)
... Charlene, this is true. - it is a fault in the mitochondrial DNA. My specialist explained it to me as being something to do with the egg, hence since men don't lay eggs... unless maybe, French Canadian men??? Zofia, I have never heard of any heart problems associated with CPEO, although two of us here had heart murmours once, likely unrelated. KSS, a related disease, does... (80 replies)
... I know this site gets people with CPEO from all over however I was wondering, of those of you in the USA, did anyone make it to the United Mitochondrial Disease Foundation's symposium? ... (80 replies)
... My youngest son has sleep apnoea and I am very worried that he might have CPEO too so he suggested I go to my GP and get him refered to a peadiatrict neurologist. ... (96 replies)
... as well as Parkinson's disease, cancer and diabetes. It's still controversial but the studies I saw regarding CPEO had the person taking a high dose 300MG per day and after a period of a year or two some symptoms were observed to reverse. I believe it was muscle strength. ... (96 replies)
... I know we all, are very busy with our lives, but this board is a good source or information for all of us. CPEO is new for many doctors and good information is hard to find. ... (96 replies)
... m 31, and I have CPEO since I was 7 years old. At that time my lids were open normal when I was about 17, my right lid started going down. ... (96 replies)
Cpeo
May 12, 2013
... That is about it I guess. Oh yes and I am 51 years old. I hope I get diagnosed soon or find out if it is cpeo or not. ... (0 replies)


Associated Tags: cpeo, droopy eyes, irregular heartbeat, ptosis

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